Written by:
Jyoti Kumari
Cancer is one of the leading causes of death globally, and India is no exception. According to the National Cancer Registry Programme (NCRP), the country recorded approximately 1.4 million new cancer cases in 2020, a figure that continues to rise. With the increasing number of cancer cases, there is an urgent need for improved cancer care in the country. Advocacy plays a critical role in driving the changes required to enhance the quality of cancer care. This article aims to provide a comprehensive guide on how individuals can get involved in cancer care advocacy in India and make a meaningful difference.
Understanding the current state of cancer care in India
The burden of cancer in India
Cancer is a significant health concern in India, with over 1 million new cases diagnosed each year. According to the World Health Organization (WHO), the most common types of cancer in India are breast, cervical, oral, and lung cancer. The rising cancer burden is attributed to factors such as aging population, lifestyle changes, and increased exposure to carcinogens.
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Challenges in cancer care
Despite the growing need, cancer care in India faces several challenges:
Accessibility issues
A significant portion of the population, especially in rural areas, lacks access to quality cancer care facilities. This leads to late diagnosis and poorer outcomes.
Financial barriers
The high cost of cancer treatment is a major hurdle for many families. According to a study by the Tata Memorial Centre, the average cost of cancer treatment in India ranges from INR 2.5 to 20 lakh, depending on the type and stage of cancer.
Lack of awareness and education
There is a general lack of awareness about cancer prevention, early detection, and treatment options. This contributes to late-stage diagnosis and lower survival rates.
Inadequate healthcare infrastructure:
Many healthcare facilities lack the necessary equipment and trained personnel to provide comprehensive cancer care. This gap in infrastructure further exacerbates the challenges faced by patients.
Why advocacy is crucial for cancer care improvement
The role of advocacy in healthcare
Advocacy involves promoting and defending the rights and needs of a particular group. In the context of healthcare, advocacy aims to influence public policies, increase awareness, and drive systemic changes that improve health outcomes. Effective advocacy can lead to improved funding for cancer research, better access to treatment, and more comprehensive healthcare policies.
Success stories of cancer advocacy
Advocacy efforts have led to significant improvements in cancer care worldwide. In India, organizations like the Indian Cancer Society and CanKids have successfully raised awareness, provided support to patients, and influenced policy changes. Globally, the Stand Up To Cancer initiative has raised millions of dollars for cancer research and brought about tangible improvements in treatment options.
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How to get involved in cancer care advocacy
Joining cancer advocacy groups and organizations
There are several organizations in India dedicated to cancer advocacy. Some prominent groups include:
Indian Cancer Society
Focuses on cancer awareness, early detection, and support for patients and their families.
CanKids KidsCan
Aims to improve the quality of life of children with cancer and their families.
Cancer Patients Aid Association (CPAA)
Provides medical and financial support to cancer patients.
Becoming a member or volunteer in these organizations can provide opportunities to participate in advocacy efforts and make a difference.
Participating in awareness campaigns
Awareness campaigns are crucial for educating the public about cancer prevention and early detection. Participating in these campaigns can involve:
Social media advocacy
Using platforms like Facebook, Twitter, and Instagram to share information and raise awareness.
Community events
Organizing or participating in local events such as cancer walks, health fairs, and educational seminars.
Workshops and seminars
Conducting educational workshops in schools, colleges, and community centers to spread awareness about cancer prevention and early detection.
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Fundraising and donations
Financial support is essential for sustaining cancer care programs and research. Fundraising activities can include:
Organizing events
Planning events such as charity runs, bake sales, and benefit concerts to raise funds.
Crowdfunding platforms
Utilizing platforms like Milaap to raise funds for cancer patients and support cancer care initiatives.
Engaging with policymakers
Engaging with policymakers is crucial for driving systemic changes. Steps to engage with policymakers include:
Writing letters
Writing letters to local and national representatives to advocate for improved cancer care policies.
Signing petitions
Supporting petitions that call for better funding and resources for cancer care.
Attending public meetings
Participating in public meetings and forums to voice concerns and suggestions.
Leveraging social media for cancer care advocacy
Creating and sharing content
Social media is a powerful tool for advocacy. Creating and sharing content can help reach a broader audience. Types of content to create include:
Blogs and articles
Writing informative blogs and articles about cancer prevention, treatment options, and personal stories of survival.
Videos and infographics
Creating engaging videos and infographics to educate and raise awareness.
Campaign hashtags
Using and promoting campaign-specific hashtags to increase visibility and engagement.
Building an online community
Building an online community can provide support and amplify advocacy efforts. Steps to build an online community include:
Creating social media groups
Starting groups on platforms like Facebook and LinkedIn to connect with like-minded individuals.
Engaging with followers
Regularly interacting with followers, responding to comments, and encouraging discussions.
Collaborating with influencers
Partnering with influencers and celebrities to reach a wider audience.
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Collaborating with healthcare professionals and researchers
The role of healthcare professionals in advocacy
Healthcare professionals play a crucial role in advocacy. Their expertise and credibility can lend significant weight to advocacy efforts. Ways healthcare professionals can support advocacy include:
Participating in awareness campaigns
Joining and promoting awareness campaigns within their professional circles and to their patients.
Providing expert opinions
Offering expert opinions and insights in media interviews, articles, and public forums.
Supporting cancer research
Research is fundamental to improving cancer care. Supporting research initiatives can involve:
Donating to research institutes
Contributing to organizations and institutes dedicated to cancer research.
Promoting clinical trials
Offering expert opinions and insights in media interviews, articles, and public forums.
Advocating for research funding
Supporting efforts to increase funding for cancer research through public and private channels.
Educating the public and promoting early detection
Conducting educational workshops and seminars
Educational workshops and seminars can significantly impact cancer awareness and prevention. Organizing these events involves:
Identifying target audiences
Tailoring workshops for different groups such as schools, workplaces, and community centers.
Collaborating with experts
Partnering with healthcare professionals and experts to provide accurate and comprehensive information.
Providing resources
Distributing educational materials such as brochures, pamphlets, and posters.
Promoting screening and early detection
Early detection of cancer significantly improves treatment outcomes. Promoting screening involves:
Raising awareness
Educating the public about the importance of regular screenings and early detection.
Providing access to screening services
Collaborating with healthcare providers to organize screening camps and mobile clinics.
Encouraging regular check-ups
Motivating individuals to undergo regular health check-ups and screenings.
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Frequently asked questions (FAQs)
Success stories on Milaap
In times of need, support means everything, and with Milaap, you need not look any further. Milaap enables you to set up a fundraiser for any medical emergency within minutes, and you can easily raise funds for treatment expenses.
Do you know someone who could benefit from fundraising? Simply refer them to us and we’ll be happy to lend a hand.
Visit www.milaap.org or call us on +91 9916174848 to get started now.
For more information, write to us at cx@milaap.org.
