{"id":31199,"date":"2026-11-12T18:55:36","date_gmt":"2026-11-12T13:25:36","guid":{"rendered":"https:\/\/pages.milaap.org\/?page_id=31199"},"modified":"2026-11-12T18:55:44","modified_gmt":"2026-11-12T13:25:44","slug":"rare-disease-treatment-cost-in-india","status":"publish","type":"page","link":"https:\/\/pages.milaap.org\/hi\/rare-disease-treatment-cost-in-india\/","title":{"rendered":"Rare Disease Treatment Cost in India: How Much Does It Cost?"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"31199\" class=\"elementor elementor-31199\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6b17c01 e-flex e-con-boxed e-con e-parent\" data-id=\"6b17c01\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-96aa021 elementor-widget elementor-widget-image\" data-id=\"96aa021\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" alt=\"\" class=\"attachment-medium size-medium wp-image-27408\" data-attachment-id=\"27408\" data-comments-opened=\"1\" data-image-caption=\"\" data-image-description=\"\" data-image-title=\"milaap-logo-tiny-4d3dbc4e55c2aaec351f0f376329c624236c4d6266b910f472684e70603f600d-1-300&amp;#215;120\" data-large-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/06\/milaap-logo-tiny-4d3dbc4e55c2aaec351f0f376329c624236c4d6266b910f472684e70603f600d-1-300x120-1.webp?fit=300%2C120&amp;ssl=1\" data-orig-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/06\/milaap-logo-tiny-4d3dbc4e55c2aaec351f0f376329c624236c4d6266b910f472684e70603f600d-1-300x120-1.webp?fit=300%2C120&amp;ssl=1\" data-orig-size=\"300,120\" data-permalink=\"https:\/\/pages.milaap.org\/liver-transplant-cost-in-india\/milaap-logo-tiny-4d3dbc4e55c2aaec351f0f376329c624236c4d6266b910f472684e70603f600d-1-300x120\/#main\" height=\"120\" sizes=\"(max-width: 300px) 100vw, 300px\" src=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/06\/milaap-logo-tiny-4d3dbc4e55c2aaec351f0f376329c624236c4d6266b910f472684e70603f600d-1-300x120-1.webp?fit=300%2C120&amp;ssl=1\" srcset=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/06\/milaap-logo-tiny-4d3dbc4e55c2aaec351f0f376329c624236c4d6266b910f472684e70603f600d-1-300x120-1.webp?w=300&amp;ssl=1 300w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/06\/milaap-logo-tiny-4d3dbc4e55c2aaec351f0f376329c624236c4d6266b910f472684e70603f600d-1-300x120-1.webp?resize=18%2C7&amp;ssl=1 18w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/06\/milaap-logo-tiny-4d3dbc4e55c2aaec351f0f376329c624236c4d6266b910f472684e70603f600d-1-300x120-1.webp?resize=150%2C60&amp;ssl=1 150w\" width=\"300\">\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-1a757def elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"1a757def\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-46beeafc\" data-id=\"46beeafc\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-40a57f71 elementor-widget elementor-widget-html\" data-id=\"40a57f71\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t\t<span style=\"display:inline-block;background:#F7EAF0;color:#7A2840;font-size:11px;font-weight:700;text-transform:uppercase;letter-spacing:.1em;padding:6px 14px;border-radius:50px;font-family:'DM Sans',sans-serif;margin-bottom:14px\">Rare Disease Treatment Cost in India<\/span>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-666dc66e elementor-widget elementor-widget-heading\" data-id=\"666dc66e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Crowdfunding for Rare Diseases: How Families in India Can Seek Financial Support<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1898fa14 elementor-widget elementor-widget-text-editor\" data-id=\"1898fa14\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<div style=\"display: flex; flex-wrap: wrap; align-items: center; gap: 8px 12px; font-size: 13px; color: #9b9b9b; font-family: 'DM Sans',sans-serif;\"><strong>12, December, 2026<\/strong><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a310af5 elementor-widget elementor-widget-image\" data-id=\"a310af5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?ssl=1\" data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-title=\"Rare Disease Treatment Cost in India: How Much Does It Cost? | Milaap Rare Disease Cost Guide\" data-elementor-lightbox-description=\"An educational visual cover guide created by Milaap introducing a specialized financial and healthcare guide on the prevalence and treatment costs of rare diseases in India:Main Title &amp; Header AreaBranding: Official Milaap logo paired with the sub-headline badge: &quot;India&#039;s Largest Crowdfunding Platform for Medical Causes&quot; at the top-left.Headline: Rare Disease Treatment Cost in India:Subtitle: How Much Does It Cost? (framed inside a soft blush-pink pill highlight).Accent: A short horizontal magenta underline beneath the subtitle.   Visual Elements &amp; Thematic MotifsMother &amp; Child Portrait (Right Side):A black-and-white emotional portrait of a South Asian mother holding her young son\u2014who has a medical nasal tube taped to his cheek\u2014both gazing upward with quiet hope.Framed against a large circular magenta backdrop that contrasts with the soft off-white canvas.Architectural Skyline Silhouette (Bottom Border):A subtle, muted mauve-grey silhouette of India Gate and an urban skyline running along the bottom right edge.3 Key Prevalence &amp; Cost Benchmarks (Bottom Left Columns)Metric PillarKey FigureContext &amp; ScopeIcon BadgeGlobal Prevalence~7,000+rare diseases worldwidePink circular badge with a DNA double helix iconNational Impact~72\u201396 millionpeople in India live with a rare diseasePink circular badge with a three-person community silhouetteFinancial Range\u20b910 lakh \u2013 \u20b925 crore+treatment cost (disease-dependent)Pink circular badge with stacked Rupee ($\\text{\u20b9}$) coins\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6MzEyMDAsInVybCI6Imh0dHBzOlwvXC9wYWdlcy5taWxhYXAub3JnXC93cC1jb250ZW50XC91cGxvYWRzXC8yMDI2XC8xMVwvMS0yLnBuZyJ9\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" alt=\"An educational guide cover graphic by Milaap titled &quot;Rare Disease Treatment Cost in India: How Much Does It Cost?&quot;, featuring a grayscale portrait of a mother holding her young son with a nasal feeding tube against a magenta circular backdrop, an India Gate skyline silhouette, and three key data metrics: ~7,000+ rare diseases worldwide, ~72\u201396 million people in India live with a rare disease, and \u20b910 lakh \u2013 \u20b925 crore+ disease-dependent treatment costs.\" class=\"attachment-full size-full wp-image-31200\" data-attachment-id=\"31200\" data-comments-opened=\"1\" data-image-caption=\"&lt;p&gt;Managing rare genetic and metabolic disorders in India often involves extraordinary, lifelong medical expenses that vary dramatically by diagnosis. Explore Milaap\u2019s educational guide breaking down the global and national prevalence of rare diseases alongside real-world treatment cost ranges to help families prepare financially and seek timely crowdfunding support.&lt;\/p&gt;\n\" data-image-description=\"&lt;p&gt;An educational visual cover guide created by Milaap introducing a specialized financial and healthcare guide on the prevalence and treatment costs of rare diseases in India:Main Title &amp;#038; Header AreaBranding: Official Milaap logo paired with the sub-headline badge: &amp;#8220;India&amp;#8217;s Largest Crowdfunding Platform for Medical Causes&amp;#8221; at the top-left.Headline: Rare Disease Treatment Cost in India:Subtitle: How Much Does It Cost? (framed inside a soft blush-pink pill highlight).Accent: A short horizontal magenta underline beneath the subtitle.   Visual Elements &amp;#038; Thematic MotifsMother &amp;#038; Child Portrait (Right Side):A black-and-white emotional portrait of a South Asian mother holding her young son\u2014who has a medical nasal tube taped to his cheek\u2014both gazing upward with quiet hope.Framed against a large circular magenta backdrop that contrasts with the soft off-white canvas.Architectural Skyline Silhouette (Bottom Border):A subtle, muted mauve-grey silhouette of India Gate and an urban skyline running along the bottom right edge.3 Key Prevalence &amp;#038; Cost Benchmarks (Bottom Left Columns)Metric PillarKey FigureContext &amp;#038; ScopeIcon BadgeGlobal Prevalence~7,000+rare diseases worldwidePink circular badge with a DNA double helix iconNational Impact~72\u201396 millionpeople in India live with a rare diseasePink circular badge with a three-person community silhouetteFinancial Range\u20b910 lakh \u2013 \u20b925 crore+treatment cost (disease-dependent)Pink circular badge with stacked Rupee ($\\text{\u20b9}$) coins&lt;\/p&gt;\n\" data-image-title=\"Rare Disease Treatment Cost in India: How Much Does It Cost? | Milaap Rare Disease Cost Guide\" data-large-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?fit=900%2C506&amp;ssl=1\" data-orig-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?fit=1920%2C1080&amp;ssl=1\" data-orig-size=\"1920,1080\" data-permalink=\"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/1-50\/#main\" height=\"1080\" sizes=\"(max-width: 900px) 100vw, 900px\" src=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?fit=1920%2C1080&amp;ssl=1\" srcset=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?w=1920&amp;ssl=1 1920w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?resize=300%2C169&amp;ssl=1 300w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?resize=1024%2C576&amp;ssl=1 1024w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?resize=768%2C432&amp;ssl=1 768w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?resize=1536%2C864&amp;ssl=1 1536w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?resize=18%2C10&amp;ssl=1 18w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?resize=150%2C84&amp;ssl=1 150w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?w=1800&amp;ssl=1 1800w\" width=\"1920\">\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-30ce9886 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"30ce9886\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-7adbf3e5\" data-id=\"7adbf3e5\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-bf9ed8f elementor-widget elementor-widget-heading\" data-id=\"bf9ed8f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">How Much Does Rare Disease Treatment Cost in India?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e80e04e elementor-widget elementor-widget-text-editor\" data-id=\"e80e04e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Rare disease treatment in India can cost several lakhs to crores of rupees, depending on the condition and therapy required. For instance, the Ministry of Health estimates the one-time cost of Zolgensma gene therapy for <strong>Spinal Muscular Atrophy (SMA) at around \u20b916 crore<\/strong>. Annual Enzyme Replacement Therapy costs for a 10 kg child with conditions such as <strong>Gaucher disease and Pompe disease can range from approximately \u20b940 lakh to \u20b950 lakh or more.<\/strong><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b40906e elementor-widget elementor-widget-heading\" data-id=\"b40906e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Rare Disease Treatment Costs in India<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-400caca elementor-widget elementor-widget-text-editor\" data-id=\"400caca\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<style>\n  table {\n    border-collapse: collapse;\n    width: 100%;\n    font-family: 'Times New Roman', Times, serif;\n    font-size: 20px;\n  }\n  th, td {\n    border: 1px solid #ccc;\n    padding: 10px;\n    text-align: left;\n  }\n  th {\n    background-color: #800020;\n    color: #ffffff;\n  }\n  tbody tr:nth-child(odd) {\n    background-color: #fbe4e9;\n  }\n<\/style>\n\n<table>\n  <thead>\n    <tr>\n      <th>Disease<\/th>\n      <th>Published Cost Estimate<\/th>\n    <\/tr>\n  <\/thead>\n  <tbody>\n    <tr>\n      <td>SMA &#8211; Zolgensma gene therapy<\/td>\n      <td>\u20b916 crore (one-time)<\/td>\n    <\/tr>\n    <tr>\n      <td>SMA &#8211; Risdiplam<\/td>\n      <td>\u20b91-2 crore annually<\/td>\n    <\/tr>\n    <tr>\n      <td>SMA &#8211; Nusinersen<\/td>\n      <td>\u20b93-5 crore annually<\/td>\n    <\/tr>\n    <tr>\n      <td>Gaucher disease<\/td>\n      <td>\u20b930 lakh annually for a 10 kg child<\/td>\n    <\/tr>\n    <tr>\n      <td>Pompe disease<\/td>\n      <td>\u20b945-50 lakh annually for a 10 kg child; \u20b92.7 crore for a 50 kg patient<\/td>\n    <\/tr>\n    <tr>\n      <td>MPS II<\/td>\n      <td>\u20b944 lakh annually<\/td>\n    <\/tr>\n  <\/tbody>\n<\/table>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8a51888 elementor-widget elementor-widget-text-editor\" data-id=\"8a51888\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><b><i>Note:<\/i><\/b><i><span style=\"font-weight: 400;\"> Costs are indicative and may vary depending on dosage, patient requirements and treatment duration.<\/span><\/i><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4ea3cc3 elementor-widget elementor-widget-html\" data-id=\"4ea3cc3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t\t<style>\r\n.ms {\r\n  background: linear-gradient(135deg, #9C3353 0%, #7A2840 100%);\r\n  border-radius: 14px;\r\n  padding: 26px;\r\n  position: relative;\r\n  overflow: hidden;\r\n  margin: 28px 0;\r\n}\r\n.ms::before {\r\n  content: '';\r\n  position: absolute;\r\n  top: -60px;\r\n  right: -60px;\r\n  width: 200px;\r\n  height: 200px;\r\n  border-radius: 50%;\r\n  background: rgba(255, 255, 255, .08);\r\n  pointer-events: none;\r\n}\r\n.ms-hd {\r\n  display: flex;\r\n  flex-wrap: wrap;\r\n  align-items: center;\r\n  justify-content: space-between;\r\n  gap: 8px;\r\n  margin-bottom: 20px;\r\n  position: relative;\r\n  z-index: 1;\r\n}\r\n.ms-lbl {\r\n  font-size: 11px;\r\n  font-weight: 600;\r\n  text-transform: uppercase;\r\n  letter-spacing: .08em;\r\n  color: rgba(255, 255, 255, .65);\r\n  font-family: 'DM Sans', sans-serif;\r\n}\r\n.ms-badge {\r\n  font-family: 'Fraunces', serif;\r\n  font-size: 13px;\r\n  font-weight: 700;\r\n  color: #fff;\r\n  background: rgba(255, 255, 255, .15);\r\n  border: 1px solid rgba(255, 255, 255, .25);\r\n  padding: 5px 14px;\r\n  border-radius: 50px;\r\n}\r\n.ms-grid {\r\n  display: grid;\r\n  grid-template-columns: repeat(auto-fit, minmax(240px, 280px));\r\n  justify-content: center;\r\n  gap: 12px;\r\n  position: relative;\r\n  z-index: 1;\r\n}\r\n.ms-stat {\r\n  background: rgba(255, 255, 255, .12);\r\n  border: 1px solid rgba(255, 255, 255, .2);\r\n  border-radius: 10px;\r\n  padding: 18px 12px;\r\n  text-align: center;\r\n}\r\n.ms-icon {\r\n  font-size: 22px;\r\n  display: block;\r\n  margin-bottom: 10px;\r\n}\r\n.ms-num {\r\n  font-family: 'Fraunces', serif;\r\n  font-size: 28px;\r\n  font-weight: 700;\r\n  color: #FFFFFF;\r\n  display: block;\r\n  line-height: 1;\r\n  margin-bottom: 6px;\r\n}\r\n.ms-lbl2 {\r\n  font-size: 11px;\r\n  color: rgba(255, 255, 255, .7);\r\n  font-family: 'DM Sans', sans-serif;\r\n  line-height: 1.4;\r\n}\r\n@media(max-width:767px) {\r\n  .ms-grid {\r\n    grid-template-columns: 1fr 1fr !important;\r\n    gap: 10px;\r\n  }\r\n  .ms-num {\r\n    font-size: 22px;\r\n  }\r\n  .ms {\r\n    padding: 18px 14px;\r\n  }\r\n}\r\n<\/style>\r\n\r\n<div class=\"ms\">\r\n  <div class=\"ms-hd\">\r\n    <span class=\"ms-lbl\">Milaap's Data: Insights on Rare Diseases Fundraisers\r\n<\/span>\r\n    <span class=\"ms-badge\">milaap<\/span>\r\n  <\/div>\r\n  <div class=\"ms-grid\">\r\n    <div class=\"ms-stat\">\r\n      <span class=\"ms-icon\">&#128330;<\/span>\r\n     <span class=\"ms-num\">100+\r\n<\/span>\r\n      <span class=\"ms-lbl2\">\r\nFamilies have setup   fundraisers for Rare Disease on MILAAP<\/span>\r\n    <\/div>\r\n    <div class=\"ms-stat\">\r\n      <span class=\"ms-icon\">&#128202;<\/span>\r\n      <span class=\"ms-num\">\u20b91.37 Cr\r\n<\/span>\r\n      <span class=\"ms-lbl2\">Total amount raised by families for Rare Disease Treatment on Milaap<\/span>\r\n    <\/div>\r\n  <\/div>\r\n<\/div>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-25aecb3 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"25aecb3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3dbaa11 elementor-widget elementor-widget-heading\" data-id=\"3dbaa11\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Why Is Rare Disease Treatment So Expensive in India?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5b5434f elementor-widget elementor-widget-text-editor\" data-id=\"5b5434f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Rare disease treatment can be expensive because developing medicines for small patient populations involves significant research costs, while specialised therapies may require complex manufacturing and imported ingredients.<\/span><\/p><ul><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Limited patient populations: <\/b><span style=\"font-weight: 400;\">Pharmaceutical companies have fewer potential users to recover the costs of research, clinical trials and drug development.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>High cost of specialised therapies:<\/b><span style=\"font-weight: 400;\"> Treatments such as gene therapy and Enzyme Replacement Therapy involve complex development and manufacturing processes.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Dependence on imported medicines:<\/b><span style=\"font-weight: 400;\"> Some rare disease drugs are not manufactured locally, making patients dependent on imported medicines.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Limited treatment alternatives:<\/b><span style=\"font-weight: 400;\"> When only one or a few therapies are available, patients have fewer options to manage treatment expenses.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Long-term treatment requirements:<\/b><span style=\"font-weight: 400;\"> Conditions requiring lifelong medication, regular infusions or continuous monitoring create recurring expenses for families.<\/span><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4c490d98 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"4c490d98\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-726eff2d elementor-widget elementor-widget-heading\" data-id=\"726eff2d\" data-element_type=\"widget\" data-e-type=\"widget\" id=\"hospitals\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">One-Time Treatment vs Lifelong Treatment: How Do the Costs Differ?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-05a3dec elementor-widget elementor-widget-text-editor\" data-id=\"05a3dec\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Rare disease treatment costs depend largely on whether a patient needs a one-time intervention or ongoing medical care. Some treatments involve a large upfront expense, while others require families to pay for medicines, therapies and monitoring over several years or throughout the patient&#8217;s life.<\/span><\/p><ul><li style=\"font-weight: 400;\" aria-level=\"1\"><b>One-time treatments:<\/b><span style=\"font-weight: 400;\"> Gene therapies and certain stem cell or <a href=\"https:\/\/pages.milaap.org\/hi\/2023\/12\/28\/these-4-gujarat-state-programmes-offer-support-for-kidney-and-liver-transplants\/\">organ transplants<\/a> may offer <\/span><a href=\"https:\/\/link.springer.com\/article\/10.1186\/s13023-024-03377-6\"><span style=\"font-weight: 400;\">long-term benefits<\/span><\/a><span style=\"font-weight: 400;\"> through a single treatment procedure. For example, Zolgensma for Spinal Muscular Atrophy (SMA) is a one-time gene therapy that can cost several crores.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Recurring medication and enzyme replacement therapy:<\/b><span style=\"font-weight: 400;\"> Conditions such as Gaucher disease, Pompe disease and Fabry disease may require regular Enzyme Replacement Therapy (ERT). Patients need repeated infusions, making treatment a recurring annual expense. Some conditions, such as SMA, also involve regular medication such as risdiplam.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Lifelong dietary and supportive care:<\/b><span style=\"font-weight: 400;\"> Certain metabolic disorders, including Phenylketonuria (PKU) and Maple Syrup Urine Disease (MSUD), require specialised diet or medical nutrition. Patients may also need regular monitoring and supportive care to manage their condition.\u00a0<\/span><\/li><\/ul><p><b><i>Note:<\/i><\/b><span style=\"font-weight: 400;\"> A one-time treatment does not necessarily mean that all future <a href=\"https:\/\/pages.milaap.org\/hi\/2023\/02\/01\/4-financial-support-schemes-for-cancer-treatment-extended-by-the-maharashtra-government\/\">medical expenses<\/a> end. Patients may still require follow-up consultations, rehabilitation and supportive care. Similarly, recurring treatment costs can vary with dosage, body weight and treatment duration.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c2d9be2 elementor-widget elementor-widget-image\" data-id=\"c2d9be2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?ssl=1\" data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-title=\"One-Time Treatment vs Lifelong Treatment | Milaap Rare Disease Financial Guide\" data-elementor-lightbox-description=\"An educational visual comparative guide created by Milaap contrasting the financial and clinical structures of single curative interventions versus ongoing maintenance therapies for rare diseases:   Main Title &amp; Header AreaBranding: Official Milaap logo paired with the sub-headline badge: &quot;India&#039;s Largest Crowdfunding Platform for Medical Causes&quot; at the top-left.Headline: One-Time Treatment vs Lifelong TreatmentAccent: A short horizontal magenta underline beneath the start of the headline.   Visual Structure &amp; Central DividerLayout Design: Two side-by-side comparative panels separated by a central circular &quot;VS&quot; badge\u2014a soft blush-pink card on the left and a cool light-blue card on the right.Side-by-Side Treatment Model Comparison1. One-Time Treatment (Left Pink Card)Header Pill: Deep magenta rounded pill reading One-Time TreatmentDefinition: &quot;A single, high-cost treatment (such as gene therapy or a curative intervention) that aims to address the root cause of the disease.&quot;Visual Anchor: A glass medical vial labeled &quot;Gene Therapy&quot; with a pink DNA icon, set beside a 3D purple DNA double helix.Key Attributes:Examples: Zolgensma (SMA) (DNA double helix icon)Goal: Long-term or potentially curative benefit (Target bullseye icon)Cost: ~\u20b916 crore (one-time) (Stacked Rupee $\\text{\u20b9}$ coins icon)   2. Lifelong Treatment (Right Blue Card)Header Pill: Deep navy-slate rounded pill reading Lifelong TreatmentDefinition: &quot;Ongoing care that continues for years or throughout life, including regular medications, enzyme replacement therapy (ERT), and supportive care (e.g., special diet, physiotherapy).&quot;Visual Anchor: A spiral desk calendar marked with a bold blue infinity symbol ($\\infty$), accompanied by a white prescription bottle, loose tablets, and blue capsules.Key Attributes:Examples: Risdiplam, Nusinersen (ERT for Gaucher, Pompe, MPS II) (Syringe icon)Nature: Recurring treatment (every year) (Circular cycle arrows icon)Typical Annual Cost: (Stacked Rupee $\\text{\u20b9}$ coins icon)~\u20b91\u20132 crore (Risdiplam)~\u20b93\u20135 crore (Nusinersen)\u20b960 lakh \u2013 \u20b96 crore+ (ERT and other rare diseases)   Key Advisory Banner (Bottom)Style: A soft blush horizontal banner anchored by a magenta circular information icon badge (i).Guidance Note: &quot;Note: A one-time treatment does not eliminate all follow-up expenses. Ongoing care, monitoring, rehabilitation and supportive therapies may still be required.&quot;   \" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6MzEyMTQsInVybCI6Imh0dHBzOlwvXC9wYWdlcy5taWxhYXAub3JnXC93cC1jb250ZW50XC91cGxvYWRzXC8yMDI2XC8xMVwvMy0xLnBuZyJ9\">\n\t\t\t\t\t\t\t<img decoding=\"async\" alt=\"An educational comparative infographic by Milaap titled &quot;One-Time Treatment vs Lifelong Treatment,&quot; contrasting single high-cost curative interventions like gene therapy (illustrated by a vial labeled Gene Therapy and a DNA double helix) with ongoing recurring care like enzyme replacement therapy and regular medications (illustrated by a desk calendar with an infinity symbol, prescription bottle, and tablets), highlighting examples, clinical goals, and cost benchmarks.\" class=\"attachment-full size-full wp-image-31214\" data-attachment-id=\"31214\" data-comments-opened=\"1\" data-image-caption=\"&lt;p&gt;Understanding whether a rare condition requires a single upfront curative intervention or continuous lifelong management is critical when planning healthcare finances. Explore Milaap\u2019s comparative guide contrasting one-time gene therapies with recurring annual treatments\u2014covering real-world drug benchmarks, clinical goals, and long-term budgeting considerations.&lt;\/p&gt;\n\" data-image-description=\"&lt;p&gt;An educational visual comparative guide created by Milaap contrasting the financial and clinical structures of single curative interventions versus ongoing maintenance therapies for rare diseases:   Main Title &amp;#038; Header AreaBranding: Official Milaap logo paired with the sub-headline badge: &amp;#8220;India&amp;#8217;s Largest Crowdfunding Platform for Medical Causes&amp;#8221; at the top-left.Headline: One-Time Treatment vs Lifelong TreatmentAccent: A short horizontal magenta underline beneath the start of the headline.   Visual Structure &amp;#038; Central DividerLayout Design: Two side-by-side comparative panels separated by a central circular &amp;#8220;VS&amp;#8221; badge\u2014a soft blush-pink card on the left and a cool light-blue card on the right.Side-by-Side Treatment Model Comparison1. One-Time Treatment (Left Pink Card)Header Pill: Deep magenta rounded pill reading One-Time TreatmentDefinition: &amp;#8220;A single, high-cost treatment (such as gene therapy or a curative intervention) that aims to address the root cause of the disease.&amp;#8221;Visual Anchor: A glass medical vial labeled &amp;#8220;Gene Therapy&amp;#8221; with a pink DNA icon, set beside a 3D purple DNA double helix.Key Attributes:Examples: Zolgensma (SMA) (DNA double helix icon)Goal: Long-term or potentially curative benefit (Target bullseye icon)Cost: ~\u20b916 crore (one-time) (Stacked Rupee $\\text{\u20b9}$ coins icon)   2. Lifelong Treatment (Right Blue Card)Header Pill: Deep navy-slate rounded pill reading Lifelong TreatmentDefinition: &amp;#8220;Ongoing care that continues for years or throughout life, including regular medications, enzyme replacement therapy (ERT), and supportive care (e.g., special diet, physiotherapy).&amp;#8221;Visual Anchor: A spiral desk calendar marked with a bold blue infinity symbol ($\\infty$), accompanied by a white prescription bottle, loose tablets, and blue capsules.Key Attributes:Examples: Risdiplam, Nusinersen (ERT for Gaucher, Pompe, MPS II) (Syringe icon)Nature: Recurring treatment (every year) (Circular cycle arrows icon)Typical Annual Cost: (Stacked Rupee $\\text{\u20b9}$ coins icon)~\u20b91\u20132 crore (Risdiplam)~\u20b93\u20135 crore (Nusinersen)\u20b960 lakh \u2013 \u20b96 crore+ (ERT and other rare diseases)   Key Advisory Banner (Bottom)Style: A soft blush horizontal banner anchored by a magenta circular information icon badge (i).Guidance Note: &amp;#8220;Note: A one-time treatment does not eliminate all follow-up expenses. Ongoing care, monitoring, rehabilitation and supportive therapies may still be required.&amp;#8221;   &lt;\/p&gt;\n\" data-image-title=\"One-Time Treatment vs Lifelong Treatment | Milaap Rare Disease Financial Guide\" data-large-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?fit=900%2C506&amp;ssl=1\" data-orig-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?fit=1920%2C1080&amp;ssl=1\" data-orig-size=\"1920,1080\" data-permalink=\"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/3-38\/#main\" height=\"1080\" sizes=\"(max-width: 900px) 100vw, 900px\" src=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?fit=1920%2C1080&amp;ssl=1\" srcset=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?w=1920&amp;ssl=1 1920w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?resize=300%2C169&amp;ssl=1 300w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?resize=1024%2C576&amp;ssl=1 1024w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?resize=768%2C432&amp;ssl=1 768w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?resize=1536%2C864&amp;ssl=1 1536w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?resize=18%2C10&amp;ssl=1 18w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?resize=150%2C84&amp;ssl=1 150w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/3-1.png?w=1800&amp;ssl=1 1800w\" width=\"1920\">\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5ce13ff elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"5ce13ff\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0cf1c37 elementor-widget elementor-widget-heading\" data-id=\"0cf1c37\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">What Additional Expenses Do Families Face Beyond Treatment Costs?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f38e79e elementor-widget elementor-widget-text-editor\" data-id=\"f38e79e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">The cost of treating a rare disease may extend beyond medicines or a specific procedure. Families may also need to pay for tests, hospital visits, supportive care and day-to-day assistance. These expenses can add up over time, particularly when treatment requires regular monitoring.<\/span><\/p><ul><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Diagnosis and genetic testing:<\/b><span style=\"font-weight: 400;\"> Identifying a rare disease can involve multiple consultations, specialised laboratory tests and genetic testing. Families may need to visit different specialists before receiving a confirmed diagnosis.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Hospitalisation and regular consultations:<\/b><span style=\"font-weight: 400;\"> Some conditions require repeated hospital admissions, specialist appointments, blood tests and other investigations to monitor the patient&#8217;s health and response to treatment.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Rehabilitation and supportive therapies:<\/b><span style=\"font-weight: 400;\"> Physiotherapy, occupational therapy, speech therapy and other supportive services may be needed to manage symptoms, maintain mobility and improve daily functioning.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Medical equipment and home care:<\/b><span style=\"font-weight: 400;\"> Depending on the condition, families may need wheelchairs, respiratory support devices, feeding equipment, mobility aids or assistance from trained caregivers.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Travel and caregiving expenses: <\/b><span style=\"font-weight: 400;\">Patients may have to travel to specialised hospitals or Centres of Excellence, sometimes in another city. Transport, accommodation, food and time away from work can add to the family&#8217;s financial burden.<\/span><\/li><\/ul><p><span style=\"font-weight: 400;\">These costs vary by disease, the patient&#8217;s needs and where treatment is available. They may continue even when the main treatment is subsidised or covered.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-60c80b1 elementor-widget elementor-widget-image\" data-id=\"60c80b1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?ssl=1\" data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-title=\"The Hidden Costs Beyond Rare Disease Treatment | Milaap Rare Disease Financial Guide\" data-elementor-lightbox-description=\"An educational visual financial guide created by Milaap illustrating the broader clinical, rehabilitative, and logistical expenses families encounter alongside primary rare disease medication costs:   \n5.jpg\n\nMain Title &amp; Header Area\nBranding: Official Milaap logo paired with the sub-headline badge: &quot;India&#039;s Largest Crowdfunding Platform for Medical Causes&quot; at the top-left.\n\nHeadline: The Hidden Costs Beyond Rare Disease Treatment\n\nAccent: A short horizontal magenta underline beneath the headline.   \n5.jpg\n\nVisual Elements &amp; Orbital Layout\nCentral Focal Point (Bottom Center):\n\nA thoughtful, concerned South Asian husband and wife seated close together, looking upward against a soft mauve circular backdrop.\n\nOrbital Architecture: Five rounded pill-shaped expense cards connected via thin radial lines and colored anchor dots orbiting above and around the couple.   \n5.jpg\n\n5 Hidden Cost Categories\nHospitalisation and consultations (Top Center \u2014 Pink Pill)\n\nVisual Anchor: A multi-story hospital building marked with a red cross emblem.\n\nScope: Inpatient admissions, specialized doctor visits, and clinical monitoring.   \n5.jpg\n\nDiagnosis and genetic testing (Middle Left \u2014 Light Blue Pill)\n\nVisual Anchor: Gloved laboratory hand holding a diagnostic blood vial beside a translucent DNA double helix.\n\nScope: Advanced genomic sequencing, specialized lab panels, and confirmatory diagnostic evaluations.   \n5.jpg\n\nRehabilitation and supportive therapies (Middle Right \u2014 Soft Blue\/Grey Pill)\n\nVisual Anchor: A blue physiotherapy exercise ball alongside purple dumbbells on an exercise mat.\n\nScope: Ongoing physiotherapy, occupational therapy, speech therapy, and functional support.   \n5.jpg\n\nMedical equipment and home care (Bottom Left \u2014 Warm Cream Pill)\n\nVisual Anchor: A mobile hospital ventilator\/monitoring unit positioned next to a folding wheelchair.\n\nScope: Assistive devices, home respiratory support, mobility aids, and at-home nursing care.   \n5.jpg\n\nTravel and caregiving (Bottom Right \u2014 Warm Cream Pill)\n\nVisual Anchor: A white passenger car parked beside a leather overnight travel bag.\n\nScope: Repeated transit to specialized tertiary centers, lodging, and full-time caregiver support.   \n5.jpg\n\nCore Advisory Banner (Bottom)\nLeft Block (Deep Magenta Pill):\n\nIcon: White outline icon of a medicine bottle and capsule.\n\nKey Takeaway: &quot;Medicine is only one part of the cost.&quot;\n\nRight Block (Soft Blush Extension):\n\nSupporting Context: &quot;Families also face several additional expenses throughout the treatment journey.&quot;\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6MzEyMTUsInVybCI6Imh0dHBzOlwvXC9wYWdlcy5taWxhYXAub3JnXC93cC1jb250ZW50XC91cGxvYWRzXC8yMDI2XC8xMVwvNS0xLnBuZyJ9\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" alt=\"An educational medical infographic by Milaap titled &quot;The Hidden Costs Beyond Rare Disease Treatment,&quot; showing a pensive couple at the bottom center surrounded by five orbital cost bubbles: Hospitalisation and consultations, Diagnosis and genetic testing, Rehabilitation and supportive therapies, Medical equipment and home care, and Travel and caregiving, paired with a bottom banner stating &quot;Medicine is only one part of the cost.&quot;\" class=\"attachment-full size-full wp-image-31215\" data-attachment-id=\"31215\" data-comments-opened=\"1\" data-image-caption=\"&lt;p&gt;High-cost orphan drugs and gene therapies are only one fraction of the financial reality when caring for a loved one with a rare condition. Explore Milaap\u2019s educational guide illustrating the five critical auxiliary expenses\u2014from diagnostic genetic testing and inpatient care to rehabilitation, home medical equipment, and ongoing travel\u2014that families must budget for across the treatment journey.&lt;\/p&gt;\n\" data-image-description=\"&lt;p&gt;An educational visual financial guide created by Milaap illustrating the broader clinical, rehabilitative, and logistical expenses families encounter alongside primary rare disease medication costs:&lt;br \/&gt;\n5.jpg&lt;\/p&gt;\n&lt;p&gt;Main Title &amp;#038; Header Area&lt;br \/&gt;\nBranding: Official Milaap logo paired with the sub-headline badge: &amp;#8220;India&amp;#8217;s Largest Crowdfunding Platform for Medical Causes&amp;#8221; at the top-left.&lt;\/p&gt;\n&lt;p&gt;Headline: The Hidden Costs Beyond Rare Disease Treatment&lt;\/p&gt;\n&lt;p&gt;Accent: A short horizontal magenta underline beneath the headline.&lt;br \/&gt;\n5.jpg&lt;\/p&gt;\n&lt;p&gt;Visual Elements &amp;#038; Orbital Layout&lt;br \/&gt;\nCentral Focal Point (Bottom Center):&lt;\/p&gt;\n&lt;p&gt;A thoughtful, concerned South Asian husband and wife seated close together, looking upward against a soft mauve circular backdrop.&lt;\/p&gt;\n&lt;p&gt;Orbital Architecture: Five rounded pill-shaped expense cards connected via thin radial lines and colored anchor dots orbiting above and around the couple.&lt;br \/&gt;\n5.jpg&lt;\/p&gt;\n&lt;p&gt;5 Hidden Cost Categories&lt;br \/&gt;\nHospitalisation and consultations (Top Center \u2014 Pink Pill)&lt;\/p&gt;\n&lt;p&gt;Visual Anchor: A multi-story hospital building marked with a red cross emblem.&lt;\/p&gt;\n&lt;p&gt;Scope: Inpatient admissions, specialized doctor visits, and clinical monitoring.&lt;br \/&gt;\n5.jpg&lt;\/p&gt;\n&lt;p&gt;Diagnosis and genetic testing (Middle Left \u2014 Light Blue Pill)&lt;\/p&gt;\n&lt;p&gt;Visual Anchor: Gloved laboratory hand holding a diagnostic blood vial beside a translucent DNA double helix.&lt;\/p&gt;\n&lt;p&gt;Scope: Advanced genomic sequencing, specialized lab panels, and confirmatory diagnostic evaluations.&lt;br \/&gt;\n5.jpg&lt;\/p&gt;\n&lt;p&gt;Rehabilitation and supportive therapies (Middle Right \u2014 Soft Blue\/Grey Pill)&lt;\/p&gt;\n&lt;p&gt;Visual Anchor: A blue physiotherapy exercise ball alongside purple dumbbells on an exercise mat.&lt;\/p&gt;\n&lt;p&gt;Scope: Ongoing physiotherapy, occupational therapy, speech therapy, and functional support.&lt;br \/&gt;\n5.jpg&lt;\/p&gt;\n&lt;p&gt;Medical equipment and home care (Bottom Left \u2014 Warm Cream Pill)&lt;\/p&gt;\n&lt;p&gt;Visual Anchor: A mobile hospital ventilator\/monitoring unit positioned next to a folding wheelchair.&lt;\/p&gt;\n&lt;p&gt;Scope: Assistive devices, home respiratory support, mobility aids, and at-home nursing care.&lt;br \/&gt;\n5.jpg&lt;\/p&gt;\n&lt;p&gt;Travel and caregiving (Bottom Right \u2014 Warm Cream Pill)&lt;\/p&gt;\n&lt;p&gt;Visual Anchor: A white passenger car parked beside a leather overnight travel bag.&lt;\/p&gt;\n&lt;p&gt;Scope: Repeated transit to specialized tertiary centers, lodging, and full-time caregiver support.&lt;br \/&gt;\n5.jpg&lt;\/p&gt;\n&lt;p&gt;Core Advisory Banner (Bottom)&lt;br \/&gt;\nLeft Block (Deep Magenta Pill):&lt;\/p&gt;\n&lt;p&gt;Icon: White outline icon of a medicine bottle and capsule.&lt;\/p&gt;\n&lt;p&gt;Key Takeaway: &amp;#8220;Medicine is only one part of the cost.&amp;#8221;&lt;\/p&gt;\n&lt;p&gt;Right Block (Soft Blush Extension):&lt;\/p&gt;\n&lt;p&gt;Supporting Context: &amp;#8220;Families also face several additional expenses throughout the treatment journey.&amp;#8221;&lt;\/p&gt;\n\" data-image-title=\"The Hidden Costs Beyond Rare Disease Treatment | Milaap Rare Disease Financial Guide\" data-large-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?fit=900%2C506&amp;ssl=1\" data-orig-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?fit=1920%2C1080&amp;ssl=1\" data-orig-size=\"1920,1080\" data-permalink=\"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/5-28\/#main\" height=\"1080\" sizes=\"(max-width: 900px) 100vw, 900px\" src=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?fit=1920%2C1080&amp;ssl=1\" srcset=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?w=1920&amp;ssl=1 1920w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?resize=300%2C169&amp;ssl=1 300w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?resize=1024%2C576&amp;ssl=1 1024w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?resize=768%2C432&amp;ssl=1 768w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?resize=1536%2C864&amp;ssl=1 1536w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?resize=18%2C10&amp;ssl=1 18w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?resize=150%2C84&amp;ssl=1 150w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/5-1.png?w=1800&amp;ssl=1 1800w\" width=\"1920\">\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3963d732 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"3963d732\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8766ea5 elementor-widget elementor-widget-heading\" data-id=\"8766ea5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Does the Government Cover Rare Disease Treatment Costs in India?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-808cad2 elementor-widget elementor-widget-text-editor\" data-id=\"808cad2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">The Government of India provides <a href=\"https:\/\/pages.milaap.org\/hi\/2023\/09\/27\/child-centric-cancer-support-organizations-in-bangalore-providing-hope-and-healing\/\">financial assistance<\/a> and certain import-duty exemptions to help families manage rare disease treatment costs. The main framework is the <\/span><a href=\"https:\/\/www.pib.gov.in\/PressReleaseIframePage.aspx?PRID=2043516&amp;lang=2&amp;reg=3\"><span style=\"font-weight: 400;\">National Policy for Rare Diseases (NPRD)<\/span><\/a><span style=\"font-weight: 400;\">, 2021, which provides financial support of up to \u20b950 lakh per patient for eligible treatment at notified Centres of Excellence (CoEs). However, this assistance does not necessarily cover the full cost of treatment, particularly when therapies cost several crores.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-990ed99 elementor-widget elementor-widget-heading\" data-id=\"990ed99\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">National Policy for Rare Diseases (NPRD), 2021:<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-38a0202 elementor-widget elementor-widget-text-editor\" data-id=\"38a0202\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Introduced by the Ministry of Health and Family Welfare in March 2021, the policy aims to improve the diagnosis, prevention and treatment of rare diseases. It also supports research and the development of affordable treatment options in India.<\/span><\/p><p><span style=\"font-weight: 400;\">The policy <\/span><a href=\"https:\/\/www.pib.gov.in\/PressReleaseIframePage.aspx?PRID=2043516&amp;lang=2&amp;reg=3\"><span style=\"font-weight: 400;\">classifies<\/span><\/a><span style=\"font-weight: 400;\"> conditions into three groups:<\/span><\/p><ul><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Group 1: <\/b><span style=\"font-weight: 400;\">Disorders that can be treated through a one-time curative intervention, such as certain stem cell or organ transplants.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Group 2:<\/b><span style=\"font-weight: 400;\"> Diseases requiring long-term or lifelong treatment, generally involving relatively lower treatment costs. These may include special dietary formulas, food for special medical purposes (FSMP) or specific medicines.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Group 3:<\/b><span style=\"font-weight: 400;\"> Diseases for which treatment is available but involves very high costs and lifelong therapy, with challenges in identifying patients who are likely to benefit.<\/span><\/li><\/ul><p><span style=\"font-weight: 400;\">Eligible patients can receive financial support of up to \u20b950 lakh for treatment at a notified <\/span><a href=\"https:\/\/sansad.in\/getFile\/annex\/267\/AU1401_98ya7t.pdf?source=pqars\"><span style=\"font-weight: 400;\">CoE<\/span><\/a><span style=\"font-weight: 400;\">. The assistance was increased from the initial \u20b920 lakh limit. It is important to note that \u20b950 lakh is the maximum assistance available, not a guaranteed amount for every patient.<\/span><\/p><p><span style=\"font-weight: 400;\">The government also provides <\/span><a href=\"https:\/\/sansad.in\/getFile\/annex\/267\/AU1401_98ya7t.pdf?source=pqars\"><span style=\"font-weight: 400;\">full exemption<\/span><\/a><span style=\"font-weight: 400;\"> from Basic Customs Duty (BCD) and Integrated Goods and Services Tax (IGST) on eligible imported drugs, medicines and food for special medical purposes for personal use or through CoEs. The exemption applies subject to the prescribed conditions and documentation. In February 2026, seven additional rare diseases, including cystinosis, hereditary angioedema and primary hyperoxaluria, were added to the customs exemption list for personal imports.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1ceb2a5 elementor-widget elementor-widget-heading\" data-id=\"1ceb2a5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Limitations of government assistance<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-52c8047 elementor-widget elementor-widget-text-editor\" data-id=\"52c8047\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">While these measures can reduce the financial burden, they may not cover the entire cost of treatment. For example, a therapy costing several crores can exceed the \u20b950 lakh assistance limit. Families may therefore still need to arrange funds for treatment expenses that exceed the available assistance, as well as related medical and caregiving costs.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2c8b771 elementor-widget elementor-widget-image\" data-id=\"2c8b771\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?ssl=1\" data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-title=\"India\u2019s National Policy for Rare Diseases: Three Treatment Categories | Milaap Policy Guide\" data-elementor-lightbox-description=\"An educational visual healthcare policy guide created by Milaap detailing the three official clinical and financial classification tiers established under India\u2019s National Policy for Rare Diseases (NPRD 2021):   Main Title &amp; Header AreaBranding: Official Milaap logo paired with the sub-headline badge: &quot;India&#039;s Largest Crowdfunding Platform for Medical Causes&quot; at the top-left.Headline: India\u2019s National Policy for Rare Diseases: Three Treatment Categories (with Three Treatment Categories highlighted in italicized magenta inside a soft blush pill).Accent: A short horizontal magenta underline beneath the headline.   Visual Setting &amp; Layout StructureInstitutional Landmark (Top Right):An architectural view of the iconic dome of the Rashtrapati Bhavan \/ Central Secretariat in New Delhi with the Indian National Tricolour flag flying beside it.Layout Design: Three equal-width vertical classification cards arranged side by side across the center, each featuring a color-coded pill header, a distinct clinical visual object, and a bottom summary box with an icon badge.   3 Treatment Categories under NPRD (2021)1. Group 1 (Left Pink Card)Header Pill: Deep magenta rounded pill reading Group 1Category Title: One-time curative treatmentVisual Anchor: A glass medical vial labeled &quot;Gene Therapy&quot; featuring a pink DNA icon, set beside a translucent purple DNA double helix.Policy Definition: &quot;A single, potentially curative treatment aimed at addressing the root cause of the disease.&quot; (Target bullseye icon badge)   2. Group 2 (Middle Blue Card)Header Pill: Deep navy-slate rounded pill reading Group 2Category Title: Long-term or lifelong treatment with relatively lower costsVisual Anchor: An amber prescription pill bottle with a white child-resistant cap accompanied by two white tablets.Policy Definition: &quot;Ongoing therapy needed for a long period or throughout life, with lower overall costs compared to Group 3.&quot; (Desk calendar icon badge)   3. Group 3 (Right Warm Cream Card)Header Pill: Golden-ochre rounded pill reading Group 3Category Title: High-cost, lifelong treatmentVisual Anchor: A clear intravenous (IV) infusion bag hanging from a stainless-steel clinical drip stand.Policy Definition: &quot;Long-term or lifelong treatment that involves significantly higher costs, such as advanced enzyme or biologic therapies.&quot; (Stacked Rupee $\\text{\u20b9}$ coins icon badge)   Policy Overview Banner (Bottom)Left Block (Deep Magenta Pill):Icon: White outline icon of a policy document with a verification shield.Header: About the PolicyRight Block (Soft Blush Extension):Summary Statement: &quot;India&#039;s National Policy for Rare Diseases (2021) classifies rare disease treatments into three groups to guide financial support and improve access to care.&quot;\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6MzEyMTcsInVybCI6Imh0dHBzOlwvXC9wYWdlcy5taWxhYXAub3JnXC93cC1jb250ZW50XC91cGxvYWRzXC8yMDI2XC8xMVwvNi0xLnBuZyJ9\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" alt=\"An educational policy infographic by Milaap titled &quot;India\u2019s National Policy for Rare Diseases: Three Treatment Categories,&quot; showing the Rashtrapati Bhavan dome with the Indian flag in the upper right, three comparative category cards\u2014Group 1 (One-time curative treatment illustrated by a Gene Therapy vial and DNA helix), Group 2 (Long-term or lifelong treatment with relatively lower costs illustrated by a prescription bottle and tablets), and Group 3 (High-cost, lifelong treatment illustrated by an IV infusion bag)\u2014and a bottom policy overview banner.\" class=\"attachment-full size-full wp-image-31217\" data-attachment-id=\"31217\" data-comments-opened=\"1\" data-image-caption=\"&lt;p&gt;Navigating healthcare financing under India\u2019s National Policy for Rare Diseases (2021) begins with understanding how conditions are categorized based on treatment duration and cost structure. Explore Milaap\u2019s educational guide breaking down Group 1, Group 2, and Group 3 classifications to help families align clinical care pathways with eligible financial assistance.&lt;\/p&gt;\n\" data-image-description=\"&lt;p&gt;An educational visual healthcare policy guide created by Milaap detailing the three official clinical and financial classification tiers established under India\u2019s National Policy for Rare Diseases (NPRD 2021):   Main Title &amp;#038; Header AreaBranding: Official Milaap logo paired with the sub-headline badge: &amp;#8220;India&amp;#8217;s Largest Crowdfunding Platform for Medical Causes&amp;#8221; at the top-left.Headline: India\u2019s National Policy for Rare Diseases: Three Treatment Categories (with Three Treatment Categories highlighted in italicized magenta inside a soft blush pill).Accent: A short horizontal magenta underline beneath the headline.   Visual Setting &amp;#038; Layout StructureInstitutional Landmark (Top Right):An architectural view of the iconic dome of the Rashtrapati Bhavan \/ Central Secretariat in New Delhi with the Indian National Tricolour flag flying beside it.Layout Design: Three equal-width vertical classification cards arranged side by side across the center, each featuring a color-coded pill header, a distinct clinical visual object, and a bottom summary box with an icon badge.   3 Treatment Categories under NPRD (2021)1. Group 1 (Left Pink Card)Header Pill: Deep magenta rounded pill reading Group 1Category Title: One-time curative treatmentVisual Anchor: A glass medical vial labeled &amp;#8220;Gene Therapy&amp;#8221; featuring a pink DNA icon, set beside a translucent purple DNA double helix.Policy Definition: &amp;#8220;A single, potentially curative treatment aimed at addressing the root cause of the disease.&amp;#8221; (Target bullseye icon badge)   2. Group 2 (Middle Blue Card)Header Pill: Deep navy-slate rounded pill reading Group 2Category Title: Long-term or lifelong treatment with relatively lower costsVisual Anchor: An amber prescription pill bottle with a white child-resistant cap accompanied by two white tablets.Policy Definition: &amp;#8220;Ongoing therapy needed for a long period or throughout life, with lower overall costs compared to Group 3.&amp;#8221; (Desk calendar icon badge)   3. Group 3 (Right Warm Cream Card)Header Pill: Golden-ochre rounded pill reading Group 3Category Title: High-cost, lifelong treatmentVisual Anchor: A clear intravenous (IV) infusion bag hanging from a stainless-steel clinical drip stand.Policy Definition: &amp;#8220;Long-term or lifelong treatment that involves significantly higher costs, such as advanced enzyme or biologic therapies.&amp;#8221; (Stacked Rupee $\\text{\u20b9}$ coins icon badge)   Policy Overview Banner (Bottom)Left Block (Deep Magenta Pill):Icon: White outline icon of a policy document with a verification shield.Header: About the PolicyRight Block (Soft Blush Extension):Summary Statement: &amp;#8220;India&amp;#8217;s National Policy for Rare Diseases (2021) classifies rare disease treatments into three groups to guide financial support and improve access to care.&amp;#8221;&lt;\/p&gt;\n\" data-image-title=\"India\u2019s National Policy for Rare Diseases: Three Treatment Categories | Milaap Policy Guide\" data-large-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?fit=900%2C506&amp;ssl=1\" data-orig-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?fit=1920%2C1080&amp;ssl=1\" data-orig-size=\"1920,1080\" data-permalink=\"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/6-23\/#main\" height=\"1080\" sizes=\"(max-width: 900px) 100vw, 900px\" src=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?fit=1920%2C1080&amp;ssl=1\" srcset=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?w=1920&amp;ssl=1 1920w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?resize=300%2C169&amp;ssl=1 300w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?resize=1024%2C576&amp;ssl=1 1024w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?resize=768%2C432&amp;ssl=1 768w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?resize=1536%2C864&amp;ssl=1 1536w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?resize=18%2C10&amp;ssl=1 18w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?resize=150%2C84&amp;ssl=1 150w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/6-1.png?w=1800&amp;ssl=1 1800w\" width=\"1920\">\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8ef185b elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"8ef185b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3d0dec9 elementor-widget elementor-widget-heading\" data-id=\"3d0dec9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">How Can Families Manage the Financial Burden of Rare Disease Treatment?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1ad88db elementor-widget elementor-widget-text-editor\" data-id=\"1ad88db\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Rare disease treatment can involve expenses that continue for months or years. Families may need to combine government assistance, medicine support programmes and fundraising to manage these costs. The options available depend on the patient&#8217;s diagnosis, prescribed treatment and eligibility.<\/span><\/p><ul><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Government financial assistance: <\/b><span style=\"font-weight: 400;\">Under the National Policy for Rare Diseases, eligible patients can receive financial assistance of up to \u20b950 lakh for treatment at a notified Centre of Excellence (CoE). Families can contact a CoE to understand the registration and assessment process. This is a maximum assistance limit, not a guaranteed payment to every patient.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Pharmaceutical company patient assistance programmes:<\/b><span style=\"font-weight: 400;\"> Some pharmaceutical companies offer patient assistance programmes (PAPs) that help eligible patients access specific medicines at reduced prices or through other forms of support. Families can ask their treating hospital or the medicine manufacturer whether a programme is available for the prescribed treatment and check its eligibility requirements.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Private <a href=\"https:\/\/pages.milaap.org\/hi\/2024\/02\/22\/transplanting-hope-maharashtras-5-organ-donation-initiatives\/\">medical crowdfunding<\/a>: <\/b><span style=\"font-weight: 400;\">Families can also raise funds through private medical crowdfunding platforms. A fundraiser can explain the patient&#8217;s condition, treatment plan and financial requirement, supported by medical records and hospital estimates. Sharing it with relatives, friends, employers and wider communities can help reach potential donors. Donations are voluntary, and a fundraiser does not guarantee that the required amount will be raised.<\/span><\/li><\/ul><p><span style=\"font-weight: 400;\">These options can be explored together. Government or medicine assistance may cover part of the treatment, while crowdfunding can help families address the remaining expenses.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f8fa5e6 elementor-widget elementor-widget-image\" data-id=\"f8fa5e6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?ssl=1\" data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-title=\"How Can Families Fund Rare Disease Treatment? | Milaap Rare Disease Funding Guide\" data-elementor-lightbox-description=\"An educational visual financial guide created by Milaap illustrating the four primary institutional, corporate, and community funding channels families can combine to finance rare disease treatments in India:   Main Title &amp; Header AreaBranding: Official Milaap logo paired with the sub-headline badge: &quot;India&#039;s Largest Crowdfunding Platform for Medical Causes&quot; at the top-left.Headline: How Can Families Fund Rare Disease Treatment?Accent: A short horizontal magenta underline centered directly beneath the headline.   Visual Elements &amp; Central Focal PointFamily Portrait (Center):A hopeful South Asian husband and wife holding their young son close together, gazing upward against a soft blush circular backdrop.Positioned directly below the family is a printed checklist document titled Treatment Expenses featuring a red cross emblem and three checked boxes.Layout Structure: Four rounded feature cards (two on the left, two on the right) linked via radial connector lines and colored anchor dots arcing around the central family portrait.   4 Rare Disease Funding Pathways1. Government financial assistance (Top Left \u2014 Warm Cream Card)Visual Anchor: The golden Ashoka Lion Capital emblem and flying Indian National Tricolour flag set above the dome of the Rashtrapati Bhavan.Program Scope: Financial support (up to \u20b950 lakh) for eligible patients under the National Policy for Rare Diseases.   2. Pharmaceutical company support (Bottom Left \u2014 Cool Blue Card)Visual Anchor: A glass medicine vial positioned beside two blue-and-white pharmaceutical capsules.Program Scope: Patient assistance programmes (PAPs) that provide medicines at reduced or no cost.   3. Government rare disease crowdfunding portal (Top Right \u2014 Cool Grey\/Blue Card)Visual Anchor: A silver laptop displaying a screen titled &quot;Government Rare Disease Crowdfunding Portal&quot; alongside the State Emblem of India and a cursor arrow.Program Scope: A dedicated government platform to raise funds for rare disease treatment.   4. Private medical crowdfunding (Bottom Right \u2014 Soft Lavender Card)Visual Anchor: A silver laptop displaying the official Milaap logo above a prominent magenta &quot;Donate&quot; CTA button.Program Scope: Raise funds from individuals, communities and well-wishers on trusted platforms like Milaap.   Key Advisory Banner (Bottom)Left Block (Deep Magenta Pill):Icon: White outline icon of an open hand supporting a Rupee ($\\text{\u20b9}$) coin.Core Takeaway: &quot;A combination of these options often helps families meet high treatment costs.&quot;Right Block (Soft Off-White Extension):Eligibility Note: &quot;Support can vary based on eligibility, disease type and treatment requirement.&quot;\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6MzEyMTksInVybCI6Imh0dHBzOlwvXC9wYWdlcy5taWxhYXAub3JnXC93cC1jb250ZW50XC91cGxvYWRzXC8yMDI2XC8xMVwvOS0xLnBuZyJ9\">\n\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" alt=\"An educational financial guide infographic by Milaap titled &quot;How Can Families Fund Rare Disease Treatment?&quot;, showing a hopeful family\u2014father, mother, and young son\u2014in the center above a &quot;Treatment Expenses&quot; checklist, surrounded by four funding pathways: Government financial assistance (up to \u20b950 lakh under the National Policy for Rare Diseases), Pharmaceutical company support (Patient Assistance Programmes), Government rare disease crowdfunding portal, and Private medical crowdfunding on trusted platforms like Milaap.\" class=\"attachment-full size-full wp-image-31219\" data-attachment-id=\"31219\" data-comments-opened=\"1\" data-image-caption=\"&lt;p&gt;Meeting the extraordinary financial demands of rare disease care often requires combining multiple support avenues. Explore Milaap\u2019s educational funding guide outlining four complementary pathways\u2014government aid under the National Policy for Rare Diseases, pharmaceutical Patient Assistance Programmes (PAPs), official government crowdfunding portals, and private medical crowdfunding\u2014to help families bridge treatment costs.&lt;\/p&gt;\n\" data-image-description=\"&lt;p&gt;An educational visual financial guide created by Milaap illustrating the four primary institutional, corporate, and community funding channels families can combine to finance rare disease treatments in India:   Main Title &amp;#038; Header AreaBranding: Official Milaap logo paired with the sub-headline badge: &amp;#8220;India&amp;#8217;s Largest Crowdfunding Platform for Medical Causes&amp;#8221; at the top-left.Headline: How Can Families Fund Rare Disease Treatment?Accent: A short horizontal magenta underline centered directly beneath the headline.   Visual Elements &amp;#038; Central Focal PointFamily Portrait (Center):A hopeful South Asian husband and wife holding their young son close together, gazing upward against a soft blush circular backdrop.Positioned directly below the family is a printed checklist document titled Treatment Expenses featuring a red cross emblem and three checked boxes.Layout Structure: Four rounded feature cards (two on the left, two on the right) linked via radial connector lines and colored anchor dots arcing around the central family portrait.   4 Rare Disease Funding Pathways1. Government financial assistance (Top Left \u2014 Warm Cream Card)Visual Anchor: The golden Ashoka Lion Capital emblem and flying Indian National Tricolour flag set above the dome of the Rashtrapati Bhavan.Program Scope: Financial support (up to \u20b950 lakh) for eligible patients under the National Policy for Rare Diseases.   2. Pharmaceutical company support (Bottom Left \u2014 Cool Blue Card)Visual Anchor: A glass medicine vial positioned beside two blue-and-white pharmaceutical capsules.Program Scope: Patient assistance programmes (PAPs) that provide medicines at reduced or no cost.   3. Government rare disease crowdfunding portal (Top Right \u2014 Cool Grey\/Blue Card)Visual Anchor: A silver laptop displaying a screen titled &amp;#8220;Government Rare Disease Crowdfunding Portal&amp;#8221; alongside the State Emblem of India and a cursor arrow.Program Scope: A dedicated government platform to raise funds for rare disease treatment.   4. Private medical crowdfunding (Bottom Right \u2014 Soft Lavender Card)Visual Anchor: A silver laptop displaying the official Milaap logo above a prominent magenta &amp;#8220;Donate&amp;#8221; CTA button.Program Scope: Raise funds from individuals, communities and well-wishers on trusted platforms like Milaap.   Key Advisory Banner (Bottom)Left Block (Deep Magenta Pill):Icon: White outline icon of an open hand supporting a Rupee ($\\text{\u20b9}$) coin.Core Takeaway: &amp;#8220;A combination of these options often helps families meet high treatment costs.&amp;#8221;Right Block (Soft Off-White Extension):Eligibility Note: &amp;#8220;Support can vary based on eligibility, disease type and treatment requirement.&amp;#8221;&lt;\/p&gt;\n\" data-image-title=\"How Can Families Fund Rare Disease Treatment? | Milaap Rare Disease Funding Guide\" data-large-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?fit=900%2C506&amp;ssl=1\" data-orig-file=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?fit=1920%2C1080&amp;ssl=1\" data-orig-size=\"1920,1080\" data-permalink=\"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/9-9\/#main\" height=\"1080\" sizes=\"(max-width: 900px) 100vw, 900px\" src=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?fit=1920%2C1080&amp;ssl=1\" srcset=\"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?w=1920&amp;ssl=1 1920w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?resize=300%2C169&amp;ssl=1 300w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?resize=1024%2C576&amp;ssl=1 1024w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?resize=768%2C432&amp;ssl=1 768w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?resize=1536%2C864&amp;ssl=1 1536w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?resize=18%2C10&amp;ssl=1 18w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?resize=150%2C84&amp;ssl=1 150w, https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/9-1.png?w=1800&amp;ssl=1 1800w\" width=\"1920\">\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-dff3029 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"dff3029\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e173e71 elementor-widget elementor-widget-heading\" data-id=\"e173e71\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">How Milaap Supports Families Raising Funds for Rare Disease Treatment \n<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f2d223d elementor-widget elementor-widget-text-editor\" data-id=\"f2d223d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">Rare disease treatment can involve high upfront expenses, recurring medicine costs and long-term care. Explaining these needs to potential donors and keeping a fundraiser active over time can be challenging for families. Milaap provides support at different stages of the fundraising process.<\/span><\/p><ul><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Presenting complex treatment needs clearly:<\/b><span style=\"font-weight: 400;\"> Families may need help explaining a rare disease, the prescribed treatment and its cost to people unfamiliar with the condition. Milaap&#8217;s campaign team can support them with campaign storytelling and help communicate the family&#8217;s financial needs.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Managing fundraising over time: <\/b><span style=\"font-weight: 400;\">Some rare disease treatments require repeated payments rather than a single hospital bill. A dedicated campaign manager can guide families through the fundraising process and help them share updates as treatment progresses.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Accessing funds when needed: <\/b><span style=\"font-weight: 400;\">With fast withdrawals, families can access donations as they come in, subject to document verification and withdrawal processing. This can be useful when medical expenses arise at different stages of treatment.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Reaching a wider donor network:<\/b><span style=\"font-weight: 400;\"> Families can share their fundraiser with friends, relatives, colleagues and other potential supporters. Employer matching benefits may also help eligible campaigns receive additional contributions through participating employers.<\/span><\/li><li style=\"font-weight: 400;\" aria-level=\"1\"><b>Raising funds without platform fees:<\/b><span style=\"font-weight: 400;\"> Milaap charges zero platform fees, allowing families to raise funds without a platform commission being deducted from donations. Payment gateway charges may still apply depending on the payment method.<\/span><\/li><\/ul><p><span style=\"font-weight: 400;\">Start a medical fundraiser on Milaap today.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2f4a9d6 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"2f4a9d6\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4021e695 elementor-widget elementor-widget-html\" data-id=\"4021e695\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t\t<p style=\"font-size:11px;font-weight:700;letter-spacing:.14em;text-transform:uppercase;color:#9C3353;margin:0 0 10px;font-family:'DM Sans',sans-serif\">Frequently Asked Questions<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4ca9ce76 elementor-widget elementor-widget-accordion\" data-id=\"4ca9ce76\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"accordion.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-accordion\">\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-1281\" class=\"elementor-tab-title\" data-tab=\"1\" role=\"button\" aria-controls=\"elementor-tab-content-1281\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><svg class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">How much does rare disease treatment cost in India?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1281\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"1\" role=\"region\" aria-labelledby=\"elementor-tab-title-1281\"><p><span style=\"font-weight: 400;\">Rare disease treatment costs in India vary widely depending on the condition and therapy required. Some patients need medicines costing a few thousand rupees, while advanced treatments such as gene therapy can cost several crores.<\/span><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-1282\" class=\"elementor-tab-title\" data-tab=\"2\" role=\"button\" aria-controls=\"elementor-tab-content-1282\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><svg class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Which rare disease treatment is the most expensive in India?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1282\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"2\" role=\"region\" aria-labelledby=\"elementor-tab-title-1282\"><p><span style=\"font-weight: 400;\">Zolgensma, a gene therapy used to treat Spinal Muscular Atrophy (SMA), is among the most expensive treatments, with a reported price of around \u20b916-18 crore for a single dose.<\/span><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-1283\" class=\"elementor-tab-title\" data-tab=\"3\" role=\"button\" aria-controls=\"elementor-tab-content-1283\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><svg class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\"> Does the Indian government provide free treatment for rare diseases?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1283\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"3\" role=\"region\" aria-labelledby=\"elementor-tab-title-1283\"><p><span style=\"font-weight: 400;\">The government does not provide free treatment for every rare disease. Under the National Policy for Rare Diseases, 2021, eligible patients can receive financial assistance of up to \u20b950 lakh for treatment at notified Centres of Excellence.<\/span><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-1284\" class=\"elementor-tab-title\" data-tab=\"4\" role=\"button\" aria-controls=\"elementor-tab-content-1284\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><svg class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Which rare diseases are covered under the National Policy for Rare Diseases?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1284\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"4\" role=\"region\" aria-labelledby=\"elementor-tab-title-1284\"><p><span style=\"font-weight: 400;\">The policy covers a defined list of rare diseases across three groups. These include conditions such as Spinal Muscular Atrophy, Gaucher disease, Pompe disease, Fabry disease, various Mucopolysaccharidoses (MPS), Phenylketonuria and several metabolic disorders. The list and classification have been updated over time.<\/span><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-1285\" class=\"elementor-tab-title\" data-tab=\"5\" role=\"button\" aria-controls=\"elementor-tab-content-1285\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><svg class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Can patients get financial assistance for rare disease treatment?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1285\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"5\" role=\"region\" aria-labelledby=\"elementor-tab-title-1285\"><p><span style=\"font-weight: 400;\">Yes. Eligible patients can seek assistance under the National Policy for Rare Diseases through notified Centres of Excellence.<\/span><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-1286\" class=\"elementor-tab-title\" data-tab=\"6\" role=\"button\" aria-controls=\"elementor-tab-content-1286\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><svg class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Can families raise funds for rare disease treatment in India?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1286\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"6\" role=\"region\" aria-labelledby=\"elementor-tab-title-1286\"><p><span style=\"font-weight: 400;\">Yes. Families can use medical crowdfunding platforms such as Milaap. They can share medical records, treatment plans and hospital estimates to explain the financial requirement and seek voluntary contributions.<\/span><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-1287\" class=\"elementor-tab-title\" data-tab=\"7\" role=\"button\" aria-controls=\"elementor-tab-content-1287\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><svg class=\"e-font-icon-svg e-fas-plus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><svg class=\"e-font-icon-svg e-fas-minus\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z\"><\/path><\/svg><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\"> How can I start a fundraiser for rare disease treatment on Milaap?<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1287\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"7\" role=\"region\" aria-labelledby=\"elementor-tab-title-1287\"><p><span style=\"font-weight: 400;\">You can start a fundraiser on Milaap by providing details about the patient&#8217;s condition, treatment requirement and estimated medical expenses. Relevant medical documents and hospital estimates help explain the need to potential donors. Milaap also offers support with campaign storytelling, fundraising guidance and donor outreach.<\/span><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<script type=\"application\/ld+json\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@type\":\"FAQPage\",\"mainEntity\":[{\"@type\":\"Question\",\"name\":\"How much does rare disease treatment cost in India?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p><span style=\\\"font-weight: 400;\\\">Rare disease treatment costs in India vary widely depending on the condition and therapy required. Some patients need medicines costing a few thousand rupees, while advanced treatments such as gene therapy can cost several crores.<\\\/span><\\\/p>\"}},{\"@type\":\"Question\",\"name\":\"Which rare disease treatment is the most expensive in India?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p><span style=\\\"font-weight: 400;\\\">Zolgensma, a gene therapy used to treat Spinal Muscular Atrophy (SMA), is among the most expensive treatments, with a reported price of around \\u20b916-18 crore for a single dose.<\\\/span><\\\/p>\"}},{\"@type\":\"Question\",\"name\":\"Does the Indian government provide free treatment for rare diseases?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p><span style=\\\"font-weight: 400;\\\">The government does not provide free treatment for every rare disease. Under the National Policy for Rare Diseases, 2021, eligible patients can receive financial assistance of up to \\u20b950 lakh for treatment at notified Centres of Excellence.<\\\/span><\\\/p>\"}},{\"@type\":\"Question\",\"name\":\"Which rare diseases are covered under the National Policy for Rare Diseases?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p><span style=\\\"font-weight: 400;\\\">The policy covers a defined list of rare diseases across three groups. These include conditions such as Spinal Muscular Atrophy, Gaucher disease, Pompe disease, Fabry disease, various Mucopolysaccharidoses (MPS), Phenylketonuria and several metabolic disorders. The list and classification have been updated over time.<\\\/span><\\\/p>\"}},{\"@type\":\"Question\",\"name\":\"Can patients get financial assistance for rare disease treatment?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p><span style=\\\"font-weight: 400;\\\">Yes. Eligible patients can seek assistance under the National Policy for Rare Diseases through notified Centres of Excellence.<\\\/span><\\\/p>\"}},{\"@type\":\"Question\",\"name\":\"Can families raise funds for rare disease treatment in India?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p><span style=\\\"font-weight: 400;\\\">Yes. Families can use medical crowdfunding platforms such as Milaap. They can share medical records, treatment plans and hospital estimates to explain the financial requirement and seek voluntary contributions.<\\\/span><\\\/p>\"}},{\"@type\":\"Question\",\"name\":\"How can I start a fundraiser for rare disease treatment on Milaap?\",\"acceptedAnswer\":{\"@type\":\"Answer\",\"text\":\"<p><span style=\\\"font-weight: 400;\\\">You can start a fundraiser on Milaap by providing details about the patient&#8217;s condition, treatment requirement and estimated medical expenses. Relevant medical documents and hospital estimates help explain the need to potential donors. Milaap also offers support with campaign storytelling, fundraising guidance and donor outreach.<\\\/span><\\\/p>\"}}]}<\/script>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t<div class=\"elementor-element elementor-element-2d8208c e-flex e-con-boxed e-con e-parent\" data-id=\"2d8208c\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-841dab5 elementor-widget elementor-widget-html\" data-id=\"841dab5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t\t<p style=\"font-size:11px;font-weight:700;letter-spacing:.14em;text-transform:uppercase;color:#9C3353;margin:0 0 10px;font-family:'DM Sans',sans-serif\">Success Stories<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a8ecfde elementor-widget elementor-widget-heading\" data-id=\"a8ecfde\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Families Who Raised on Milaap<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f8c9af3 elementor-widget elementor-widget-text-editor\" data-id=\"f8c9af3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p style=\"font-size: 15px; color: #555555; font-family: 'DM Sans',sans-serif; margin: 0;\">Hear directly from families who funded their treatment through crowdfunding<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-3a8808b e-flex e-con-boxed e-con e-parent\" data-id=\"3a8808b\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-6e8a6e7 e-con-full e-flex e-con e-child\" data-id=\"6e8a6e7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-cd042b9 elementor-widget elementor-widget-video\" data-id=\"cd042b9\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtube.com\\\/shorts\\\/O3hprwUgF84&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-d253300 e-con-full e-flex e-con e-child\" data-id=\"d253300\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2696bf2 elementor-widget elementor-widget-video\" data-id=\"2696bf2\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtube.com\\\/shorts\\\/8Bq800_R9ng&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ac96e3e e-flex e-con-boxed e-con e-parent\" data-id=\"ac96e3e\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-69cb266 elementor-widget elementor-widget-html\" data-id=\"69cb266\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t\t<p style=\"font-size:11px;font-weight:700;letter-spacing:.14em;text-transform:uppercase;color:#9C3353;margin:0 0 10px;font-family:'DM Sans',sans-serif\">Interactive Tool<\/p>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cf005c9 elementor-widget elementor-widget-html\" data-id=\"cf005c9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t\t<style>\r\n  @import url('https:\/\/fonts.googleapis.com\/css2?family=Source+Serif+4:opsz,wght@8..60,600;8..60,700&family=Inter:wght@400;500;600;700&display=swap');\r\n\r\n  .rdc-wrap{\r\n    --bg: #F3E7E9;\r\n    --paper: #FDF7F8;\r\n    --ink: #4A0F1E;\r\n    --ink-soft: #8C4055;\r\n    --line: #E3C1C8;\r\n    --accent: #A32642;\r\n    --accent-deep: #7A1B31;\r\n    max-width: 740px;\r\n    margin: 0 auto;\r\n    font-family: 'Inter', sans-serif;\r\n    color: var(--ink);\r\n  }\r\n\r\n  .rdc-wrap *{ box-sizing: border-box; }\r\n\r\n  .rdc-head{ margin-bottom: 16px; }\r\n  .rdc-head h2{\r\n    font-family: 'Source Serif 4', serif;\r\n    font-weight: 700;\r\n    font-size: clamp(1.3rem, 3.2vw, 1.7rem);\r\n    margin: 0 0 4px;\r\n  }\r\n  .rdc-head p{ font-size: 0.9rem; color: var(--ink-soft); margin: 0; line-height: 1.5; }\r\n\r\n  .rdc-card{\r\n    background: var(--paper);\r\n    border: 1px solid var(--line);\r\n    border-radius: 6px;\r\n    padding: 16px 18px;\r\n    margin-bottom: 12px;\r\n  }\r\n\r\n  .rdc-title{\r\n    font-family: 'Source Serif 4', serif;\r\n    font-size: 1rem;\r\n    font-weight: 600;\r\n    margin: 0 0 4px;\r\n  }\r\n\r\n  .rdc-sub{\r\n    font-size: 0.8rem;\r\n    color: var(--ink-soft);\r\n    line-height: 1.45;\r\n    margin: 0 0 10px;\r\n    padding-bottom: 8px;\r\n    border-bottom: 1px solid var(--line);\r\n  }\r\n\r\n  .rdc-row{ display:flex; align-items: center; justify-content: space-between; gap: 14px; padding: 7px 0; }\r\n  .rdc-row > label{ flex: 1; font-size: 0.88rem; line-height: 1.4; }\r\n  .rdc-hint{ display:block; font-size: 0.74rem; color: var(--ink-soft); margin-top: 2px; }\r\n  .rdc-fields{ display:flex; gap: 8px; flex-shrink: 0; }\r\n\r\n  .rdc-field{\r\n    display:flex;\r\n    align-items: center;\r\n    background: #fff;\r\n    border: 1px solid var(--line);\r\n    border-radius: 4px;\r\n    padding: 6px 10px;\r\n    width: 160px;\r\n  }\r\n\r\n  .rdc-field.rdc-narrow{ width: 130px; }\r\n  .rdc-field span{ color: var(--ink-soft); font-size: 0.82rem; margin: 0 3px; white-space: nowrap; }\r\n\r\n  .rdc-field input{\r\n    border: none;\r\n    outline: none;\r\n    font-family: 'Inter', sans-serif;\r\n    font-variant-numeric: tabular-nums;\r\n    font-size: 0.95rem;\r\n    width: 100%;\r\n    min-width: 0;\r\n    text-align: right;\r\n    background: transparent;\r\n    color: var(--ink);\r\n  }\r\n\r\n  .rdc-check{\r\n    display:flex;\r\n    align-items:flex-start;\r\n    gap: 10px;\r\n    padding: 8px 0 4px;\r\n    cursor: pointer;\r\n    font-size: 0.86rem;\r\n    line-height: 1.4;\r\n    color: var(--accent-deep);\r\n  }\r\n\r\n  .rdc-check input{ width: 18px; height: 18px; margin: 1px 0 0; accent-color: var(--accent-deep); flex-shrink: 0; }\r\n\r\n  .rdc-hide{ display:none !important; }\r\n\r\n  .rdc-slider-head{ display:flex; justify-content: space-between; align-items: baseline; gap: 10px; margin: 10px 0 6px; }\r\n  .rdc-slider-head label{ font-size: 0.88rem; color: var(--ink-soft); }\r\n  .rdc-slider-head strong{ font-variant-numeric: tabular-nums; color: var(--accent-deep); font-size: 0.9rem; }\r\n  #rdc-years{ width: 100%; accent-color: var(--accent-deep); }\r\n\r\n  .rdc-result{ background: var(--ink); color: #fff; border-radius: 6px; padding: 20px 18px; }\r\n\r\n  .rdc-top-label{ font-size: 0.82rem; color: #D9AEB9; margin-bottom: 4px; }\r\n\r\n  .rdc-top{\r\n    font-family: 'Source Serif 4', serif;\r\n    font-weight: 700;\r\n    font-size: clamp(2rem, 6vw, 2.8rem);\r\n    line-height: 1.05;\r\n    color: #F2A9BB;\r\n    margin-bottom: 6px;\r\n  }\r\n\r\n  .rdc-top-sub{ font-size: 0.86rem; line-height: 1.5; color: #F3DEE3; margin-bottom: 18px; }\r\n\r\n  .rdc-chart{ display:flex; align-items:flex-end; gap: 6px; height: 130px; }\r\n  .rdc-col{ flex: 1; min-width: 0; display:flex; flex-direction: column; justify-content: flex-end; height: 100%; }\r\n  .rdc-in{ background: rgba(255,255,255,0.32); }\r\n  .rdc-out{ background: #F2A9BB; border-radius: 2px 2px 0 0; }\r\n  .rdc-in:only-child{ border-radius: 2px 2px 0 0; }\r\n\r\n  .rdc-axis{ display:flex; gap: 6px; margin-top: 5px; }\r\n  .rdc-axis div{ flex: 1; min-width: 0; text-align: center; font-size: 0.64rem; color: #D9AEB9; line-height: 1.3; }\r\n  .rdc-axis b{ display:block; font-weight: 600; color: #F3DEE3; }\r\n\r\n  .rdc-legend{ display:flex; flex-wrap: wrap; gap: 6px 16px; margin: 12px 0 14px; font-size: 0.76rem; color: #D9AEB9; }\r\n  .rdc-legend span{ display:flex; align-items:center; gap: 6px; }\r\n  .rdc-legend i{ width: 11px; height: 11px; border-radius: 2px; display:inline-block; }\r\n\r\n  .rdc-line{\r\n    display:flex;\r\n    justify-content: space-between;\r\n    gap: 12px;\r\n    font-size: 0.86rem;\r\n    padding: 6px 0;\r\n    color: #D9AEB9;\r\n    border-bottom: 1px solid rgba(255,255,255,0.1);\r\n  }\r\n\r\n  .rdc-line span:last-child{ color: #F3DEE3; font-variant-numeric: tabular-nums; text-align: right; font-weight: 500; }\r\n  .rdc-line.rdc-minus span:last-child::before{ content: \"\\2212 \"; }\r\n  .rdc-line.rdc-gap{ border-bottom: none; padding-top: 12px; }\r\n  .rdc-line.rdc-gap span{ color: #F2A9BB; font-weight: 600; font-size: 0.98rem; }\r\n\r\n  .rdc-callout{\r\n    margin-top: 12px;\r\n    padding: 10px 12px;\r\n    border: 1px solid #F2A9BB;\r\n    border-radius: 5px;\r\n    font-size: 0.82rem;\r\n    line-height: 1.5;\r\n    color: #F3DEE3;\r\n  }\r\n\r\n  .rdc-note{ font-size: 0.78rem; color: var(--ink-soft); line-height: 1.55; margin-top: 12px; }\r\n\r\n  @media (max-width: 600px){\r\n    .rdc-row{ flex-direction: column; align-items: stretch; gap: 6px; }\r\n    .rdc-fields{ width: 100%; }\r\n    .rdc-field, .rdc-field.rdc-narrow{ flex: 1; width: auto; }\r\n    .rdc-axis div{ font-size: 0.58rem; }\r\n  }\r\n<\/style>\r\n\r\n<div class=\"rdc-wrap\">\r\n\r\n  <div class=\"rdc-head\">\r\n    <h2>Rare disease: what will ongoing treatment cost as the patient grows?<\/h2>\r\n    <p>For therapies dosed by body weight, the cost rises with weight. Project it year by year, and see how long the \u20b950 lakh NPRD maximum would last.<\/p>\r\n  <\/div>\r\n\r\n  <div class=\"rdc-card\">\r\n    <div class=\"rdc-title\">1. Treatment today<\/div>\r\n    <p class=\"rdc-sub\">Use the hospital's quote for the current dose.<\/p>\r\n\r\n    <div class=\"rdc-row\">\r\n      <label>Annual treatment cost today<span class=\"rdc-hint\">For example enzyme replacement therapy or regular medication<\/span><\/label>\r\n      <div class=\"rdc-fields\"><div class=\"rdc-field\"><span>\u20b9<\/span><input type=\"text\" inputmode=\"numeric\" class=\"rdc-inp\" id=\"rdc-annual\" placeholder=\"0\"><\/div><\/div>\r\n    <\/div>\r\n\r\n    <label class=\"rdc-check\"><input type=\"checkbox\" id=\"rdc-wt\"><span>The dose is based on body weight (as with enzyme replacement therapy), so cost rises as weight does<\/span><\/label>\r\n\r\n    <div class=\"rdc-row rdc-hide\" id=\"rdc-wtRow1\">\r\n      <label>Current weight<\/label>\r\n      <div class=\"rdc-fields\"><div class=\"rdc-field\"><input type=\"text\" inputmode=\"decimal\" class=\"rdc-inp\" id=\"rdc-w0\" placeholder=\"0\"><span>kg<\/span><\/div><\/div>\r\n    <\/div>\r\n    <div class=\"rdc-row rdc-hide\" id=\"rdc-wtRow2\">\r\n      <label>Expected weight gain per year<span class=\"rdc-hint\">Ask the treating doctor. Enter 0 if weight is stable<\/span><\/label>\r\n      <div class=\"rdc-fields\"><div class=\"rdc-field\"><input type=\"text\" inputmode=\"decimal\" class=\"rdc-inp\" id=\"rdc-gain\" placeholder=\"0\"><span>kg<\/span><\/div><\/div>\r\n    <\/div>\r\n\r\n    <div class=\"rdc-slider-head\"><label>Years to plan for<\/label><strong id=\"rdc-yearsVal\">5 years<\/strong><\/div>\r\n    <input type=\"range\" id=\"rdc-years\" min=\"1\" max=\"10\" step=\"1\" value=\"5\">\r\n  <\/div>\r\n\r\n  <div class=\"rdc-card\">\r\n    <div class=\"rdc-title\">2. Support available<\/div>\r\n    <p class=\"rdc-sub\">Only approved or sanctioned amounts, across the whole period. This is optional.<\/p>\r\n    <div class=\"rdc-row\">\r\n      <label>Total support over this period<span class=\"rdc-hint\">Assistance, patient assistance programmes, charity, family<\/span><\/label>\r\n      <div class=\"rdc-fields\"><div class=\"rdc-field\"><span>\u20b9<\/span><input type=\"text\" inputmode=\"numeric\" class=\"rdc-inp\" id=\"rdc-support\" placeholder=\"0\"><\/div><\/div>\r\n    <\/div>\r\n  <\/div>\r\n\r\n  <div class=\"rdc-result\">\r\n    <div class=\"rdc-top-label\" id=\"rdc-topLabel\">Total treatment cost<\/div>\r\n    <div class=\"rdc-top\" id=\"rdc-top\">\u20b90<\/div>\r\n    <div class=\"rdc-top-sub\" id=\"rdc-sub\">Enter your annual treatment cost to begin.<\/div>\r\n    <div id=\"rdc-visual\"><\/div>\r\n    <div id=\"rdc-lines\"><\/div>\r\n    <div id=\"rdc-callout\"><\/div>\r\n  <\/div>\r\n\r\n  <p class=\"rdc-note\">This assumes cost rises in proportion to body weight. Ask the hospital how your dose and price are calculated, as dosing and prices can change. The \u20b950 lakh NPRD figure is the maximum assistance per eligible patient at a notified Centre of Excellence. It is not a guaranteed amount, so treat the bars as showing the most it could cover. For reference, the Ministry of Health's indicative estimates put Pompe disease at \u20b945\u201350 lakh a year for a 10 kg child and \u20b92.7 crore for a 50 kg patient.<\/p>\r\n\r\n<\/div>\r\n\r\n<script>\r\n(function(){\r\n  const NPRD_MAX = 5000000;\r\n  const el = id => document.getElementById('rdc-' + id);\r\n\r\n  function toNum(v){ const n = parseFloat((v || '').replace(\/,\/g, '')); return isNaN(n) ? 0 : n; }\r\n\r\n  function formatINR(n){\r\n    n = Math.max(Math.round(n), 0);\r\n    let s = n.toString();\r\n    let last3 = s.slice(-3);\r\n    let rest = s.slice(0, -3);\r\n    if (rest !== '') last3 = ',' + last3;\r\n    return '\u20b9' + (rest.replace(\/\\B(?=(\\d{2})+(?!\\d))\/g, ',') + last3);\r\n  }\r\n\r\n  function short(n){\r\n    if (n >= 10000000) return '\u20b9' + (n \/ 10000000).toFixed(1).replace(\/\\.0$\/, '') + 'Cr';\r\n    if (n >= 100000) return '\u20b9' + (n \/ 100000).toFixed(1).replace(\/\\.0$\/, '') + 'L';\r\n    return '\u20b9' + Math.round(n \/ 1000) + 'K';\r\n  }\r\n\r\n  function span(months){\r\n    const y = Math.floor(months \/ 12);\r\n    const m = Math.round(months - y * 12);\r\n    const mm = m === 12 ? 0 : m;\r\n    const yy = m === 12 ? y + 1 : y;\r\n    const parts = [];\r\n    if (yy > 0) parts.push(yy + (yy === 1 ? ' year' : ' years'));\r\n    if (mm > 0) parts.push(mm + (mm === 1 ? ' month' : ' months'));\r\n    return parts.length ? parts.join(' and ') : 'under a month';\r\n  }\r\n\r\n  document.querySelector('.rdc-wrap').addEventListener('input', e => {\r\n    if (e.target.classList.contains('rdc-inp')){\r\n      e.target.value = e.target.id === 'rdc-w0' || e.target.id === 'rdc-gain'\r\n        ? e.target.value.replace(\/[^\\d.]\/g, '').replace(\/(\\..*)\\.\/g, '$1')\r\n        : e.target.value.replace(\/[^\\d]\/g, '');\r\n      recalc();\r\n    }\r\n  });\r\n  el('years').addEventListener('input', recalc);\r\n  el('wt').addEventListener('change', recalc);\r\n\r\n  function recalc(){\r\n    const annual = toNum(el('annual').value);\r\n    const useWt = el('wt').checked;\r\n    const w0 = toNum(el('w0').value);\r\n    const gain = toNum(el('gain').value);\r\n    const years = parseInt(el('years').value, 10);\r\n    const support = toNum(el('support').value);\r\n\r\n    el('wtRow1').classList.toggle('rdc-hide', !useWt);\r\n    el('wtRow2').classList.toggle('rdc-hide', !useWt);\r\n    el('yearsVal').textContent = years + (years === 1 ? ' year' : ' years');\r\n\r\n    const top = el('top'), sub = el('sub'), visual = el('visual'), lines = el('lines'), callout = el('callout');\r\n\r\n    const weightOk = !useWt || w0 > 0;\r\n    if (annual <= 0 || !weightOk){\r\n      top.textContent = '\u20b90';\r\n      sub.textContent = useWt && annual > 0 ? 'Enter the current weight to project the cost.' : 'Enter your annual treatment cost to begin.';\r\n      visual.innerHTML = ''; lines.innerHTML = ''; callout.innerHTML = '';\r\n      return;\r\n    }\r\n\r\n    const costs = [];\r\n    for (let y = 1; y <= years; y++){\r\n      const weight = useWt ? w0 + gain * (y - 1) : null;\r\n      costs.push(useWt ? annual * weight \/ w0 : annual);\r\n    }\r\n    const total = costs.reduce((a, c) => a + c, 0);\r\n\r\n    let remaining = NPRD_MAX, months = 0, exhausted = false;\r\n    const within = costs.map(c => {\r\n      const w = Math.min(c, Math.max(remaining, 0));\r\n      if (!exhausted){\r\n        if (c <= remaining){ months += 12; }\r\n        else { months += 12 * (Math.max(remaining, 0) \/ c); exhausted = true; }\r\n      }\r\n      remaining -= c;\r\n      return w;\r\n    });\r\n\r\n    top.textContent = formatINR(total);\r\n    el('topLabel').textContent = 'Total treatment cost over ' + years + (years === 1 ? ' year' : ' years');\r\n    sub.textContent = useWt && gain > 0\r\n      ? 'Year 1 costs ' + formatINR(costs[0]) + ' and year ' + years + ' costs ' + formatINR(costs[years - 1]) + ', as weight rises from ' + w0 + ' kg to ' + (w0 + gain * (years - 1)).toFixed(gain % 1 === 0 ? 0 : 1) + ' kg.'\r\n      : 'About ' + formatINR(total \/ years) + ' a year on average.';\r\n\r\n    const maxCost = Math.max.apply(null, costs);\r\n    let bars = '', axis = '';\r\n    costs.forEach((c, i) => {\r\n      const inH = within[i] \/ maxCost * 100;\r\n      const outH = (c - within[i]) \/ maxCost * 100;\r\n      bars += '<div class=\"rdc-col\">' +\r\n        (outH > 0 ? '<div class=\"rdc-out\" style=\"height:' + outH + '%\"><\/div>' : '') +\r\n        (inH > 0 ? '<div class=\"rdc-in\" style=\"height:' + inH + '%\"><\/div>' : '') + '<\/div>';\r\n      axis += '<div><b>Y' + (i + 1) + '<\/b>' + short(c) + '<\/div>';\r\n    });\r\n    visual.innerHTML = '<div class=\"rdc-chart\">' + bars + '<\/div><div class=\"rdc-axis\">' + axis + '<\/div>' +\r\n      '<div class=\"rdc-legend\"><span><i style=\"background:rgba(255,255,255,0.32)\"><\/i>Within the \u20b950 lakh NPRD maximum<\/span><span><i style=\"background:#F2A9BB\"><\/i>Beyond it<\/span><\/div>';\r\n\r\n    const gap = Math.max(total - support, 0);\r\n    let l = '<div class=\"rdc-line\"><span>Total cost over ' + years + (years === 1 ? ' year' : ' years') + '<\/span><span>' + formatINR(total) + '<\/span><\/div>';\r\n    if (support > 0){\r\n      l += '<div class=\"rdc-line rdc-minus\"><span>Support available<\/span><span>' + formatINR(support) + '<\/span><\/div>';\r\n      l += '<div class=\"rdc-line rdc-gap\"><span>Still to arrange<\/span><span>' + formatINR(gap) + '<\/span><\/div>';\r\n    }\r\n    lines.innerHTML = l;\r\n\r\n    callout.innerHTML = exhausted\r\n      ? '<div class=\"rdc-callout\">At this cost, even the full \u20b950 lakh NPRD maximum would cover about <strong>' + span(months) + '<\/strong> of treatment. After that, the cost has to come from other sources.<\/div>'\r\n      : '<div class=\"rdc-callout\">At this cost, the full \u20b950 lakh NPRD maximum would cover the whole ' + years + '-year plan. Remember it is a maximum, not a guaranteed amount.<\/div>';\r\n  }\r\n\r\n  recalc();\r\n})();\r\n<\/script>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-0aef543 e-flex e-con-boxed e-con e-parent\" data-id=\"0aef543\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;gradient&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-fbd636a e-con-full e-flex e-con e-child\" data-id=\"fbd636a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-626f38d elementor-widget elementor-widget-heading\" data-id=\"626f38d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Need Help Funding Treatment?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5e8d31d elementor-widget elementor-widget-text-editor\" data-id=\"5e8d31d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p style=\"font-size: 15px; line-height: 1.7; color: rgba(255,255,255,.65); font-family: 'DM Sans',sans-serif; margin-bottom: 20px;\">Our fundraising experts have helped 100+ families have launch and run successful Rare Disease treatment campaigns. Book a free consultation today.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0afceeb elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"0afceeb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check-circle\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M504 256c0 136.967-111.033 248-248 248S8 392.967 8 256 119.033 8 256 8s248 111.033 248 248zM227.314 387.314l184-184c6.248-6.248 6.248-16.379 0-22.627l-22.627-22.627c-6.248-6.249-16.379-6.249-22.628 0L216 308.118l-70.059-70.059c-6.248-6.248-16.379-6.248-22.628 0l-22.627 22.627c-6.248 6.248-6.248 16.379 0 22.627l104 104c6.249 6.249 16.379 6.249 22.628.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Free 1:1 call with crowdfunding expert<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check-circle\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M504 256c0 136.967-111.033 248-248 248S8 392.967 8 256 119.033 8 256 8s248 111.033 248 248zM227.314 387.314l184-184c6.248-6.248 6.248-16.379 0-22.627l-22.627-22.627c-6.248-6.249-16.379-6.249-22.628 0L216 308.118l-70.059-70.059c-6.248-6.248-16.379-6.248-22.628 0l-22.627 22.627c-6.248 6.248-6.248 16.379 0 22.627l104 104c6.249 6.249 16.379 6.249 22.628.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Campaign live in under 10 minutes<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check-circle\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M504 256c0 136.967-111.033 248-248 248S8 392.967 8 256 119.033 8 256 8s248 111.033 248 248zM227.314 387.314l184-184c6.248-6.248 6.248-16.379 0-22.627l-22.627-22.627c-6.248-6.249-16.379-6.249-22.628 0L216 308.118l-70.059-70.059c-6.248-6.248-16.379-6.248-22.628 0l-22.627 22.627c-6.248 6.248-6.248 16.379 0 22.627l104 104c6.249 6.249 16.379 6.249 22.628.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">0% platform fee<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fas-check-circle\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M504 256c0 136.967-111.033 248-248 248S8 392.967 8 256 119.033 8 256 8s248 111.033 248 248zM227.314 387.314l184-184c6.248-6.248 6.248-16.379 0-22.627l-22.627-22.627c-6.248-6.249-16.379-6.249-22.628 0L216 308.118l-70.059-70.059c-6.248-6.248-16.379-6.248-22.628 0l-22.627 22.627c-6.248 6.248-6.248 16.379 0 22.627l104 104c6.249 6.249 16.379 6.249 22.628.001z\"><\/path><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Dedicated fundraising manager assigned<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-073ad39 e-con-full e-flex e-con e-child\" data-id=\"073ad39\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-71c79b5 elementor-widget elementor-widget-heading\" data-id=\"71c79b5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Request a Free Callback<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c68d652 elementor-widget elementor-widget-text-editor\" data-id=\"c68d652\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p style=\"font-size: 12px; color: #9b9b9b; font-family: 'DM Sans',sans-serif; margin-bottom: 16px;\">Our team will contact you shortly<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-30fdd7a elementor-widget elementor-widget-shortcode\" data-id=\"30fdd7a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"shortcode.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-shortcode\"><div class=\"forminator-ui forminator-custom-form forminator-custom-form-9338 forminator-design--default forminator-custom forminator_ajax\" data-forminator-render=\"0\" data-form=\"forminator-module-9338\" data-uid=\"6af6d0ae4944b\"><br\/><\/div><form\n\t\t\t\tid=\"forminator-module-9338\"\n\t\t\t\tclass=\"forminator-ui forminator-custom-form forminator-custom-form-9338 forminator-design--default forminator-custom forminator_ajax\"\n\t\t\t\tmethod=\"post\"\n\t\t\t\tdata-forminator-render=\"0\"\n\t\t\t\tdata-form-id=\"9338\"\n\t\t\t\t data-color-option=\"default\" data-design=\"default\" data-grid=\"custom\" style=\"display: none;\"\n\t\t\t\tdata-uid=\"6af6d0ae4944b\"\n\t\t\t><div role=\"alert\" aria-live=\"polite\" class=\"forminator-response-message forminator-error\" aria-hidden=\"true\"><\/div><div class=\"forminator-row\"><div id=\"name-1\" class=\"forminator-field-name forminator-col forminator-col-12 \"><div class=\"forminator-field\"><label for=\"forminator-field-name-1_6af6d0ae4944b\" id=\"forminator-field-name-1_6af6d0ae4944b-label\" class=\"forminator-label\">Name <span class=\"forminator-required\">*<\/span><\/label><input type=\"text\" name=\"name-1\" value=\"\" placeholder=\"E.g. John Doe\" id=\"forminator-field-name-1_6af6d0ae4944b\" class=\"forminator-input forminator-name--field\" aria-required=\"true\" autocomplete=\"name\" \/><\/div><\/div><\/div><div class=\"forminator-row\"><div id=\"phone-1\" class=\"forminator-field-phone forminator-col forminator-col-12 \"><div class=\"forminator-field\"><label for=\"forminator-field-phone-1_6af6d0ae4944b\" id=\"forminator-field-phone-1_6af6d0ae4944b-label\" class=\"forminator-label\">Phone <span class=\"forminator-required\">*<\/span><\/label><input type=\"text\" name=\"phone-1\" value=\"\" placeholder=\"Eg. 9004005000\" id=\"forminator-field-phone-1_6af6d0ae4944b\" class=\"forminator-input forminator-field--phone\" data-required=\"1\" aria-required=\"true\" autocomplete=\"off\" data-national_mode=\"enabled\" data-country=\"in\" data-validation=\"standard\" \/><\/div><\/div><\/div><div class=\"forminator-row\"><div id=\"select-1\" class=\"forminator-field-select forminator-col forminator-col-12 \"><div class=\"forminator-field\"><label for=\"forminator-form-9338__field--select-1_6af6d0ae4944b\" id=\"forminator-form-9338__field--select-1_6af6d0ae4944b-label\" class=\"forminator-label\">What do you need funds for?<\/label><select  id=\"forminator-form-9338__field--select-1_6af6d0ae4944b\" class=\"forminator-select--field forminator-select2 forminator-select2-multiple\" data-required=\"\" name=\"select-1\" data-default-value=\"\" data-placeholder=\"Select\" data-search=\"false\" data-search-placeholder=\"Select\" data-checkbox=\"false\" data-allow-clear=\"false\" aria-labelledby=\"forminator-form-9338__field--select-1_6af6d0ae4944b-label\"><option value=\"\"  >Select<\/option><option value=\"Cancer-treatment\"  data-calculation=\"0\"><a href=\"https:\/\/pages.milaap.org\/hi\/2023\/02\/02\/cancer-treatment-schemes-west-bengal\/\">Cancer treatment<\/a><\/option><option value=\"Liver-transplant\"  data-calculation=\"0\">Liver transplant<\/option><option value=\"Memorial\"  data-calculation=\"0\">Memorial<\/option><option value=\"Kidney-transplant\"  data-calculation=\"0\">Kidney transplant<\/option><option value=\"Cardiac-surgery\"  data-calculation=\"0\">Cardiac surgery<\/option><option value=\"Accident-trauma-treatment\"  data-calculation=\"0\">Accident\/trauma treatment<\/option><option value=\"ICU-care-(Adult)\"  data-calculation=\"0\">ICU care (Adult)<\/option><option value=\"ICU-care-(Child)\"  data-calculation=\"0\">ICU care (Child)<\/option><option value=\"Others\"  data-calculation=\"0\">Others<\/option><\/select><\/div><\/div><\/div><div class=\"forminator-row\"><div id=\"select-2\" class=\"forminator-field-select forminator-col forminator-col-12 \"><div class=\"forminator-field\"><label for=\"forminator-form-9338__field--select-2_6af6d0ae4944b\" id=\"forminator-form-9338__field--select-2_6af6d0ae4944b-label\" class=\"forminator-label\">Preferred Language<\/label><select  id=\"forminator-form-9338__field--select-2_6af6d0ae4944b\" class=\"forminator-select--field forminator-select2 forminator-select2-multiple\" data-required=\"\" name=\"select-2\" data-default-value=\"\" data-placeholder=\"Select\" data-search=\"false\" data-search-placeholder=\"Select\" data-checkbox=\"false\" data-allow-clear=\"false\" aria-labelledby=\"forminator-form-9338__field--select-2_6af6d0ae4944b-label\"><option value=\"\"  >Select<\/option><option value=\"English\"  data-calculation=\"0\">English<\/option><option value=\"Tamil\"  data-calculation=\"0\">Tamil<\/option><option value=\"Hindi\"  data-calculation=\"0\">Hindi<\/option><option value=\"Telugu\"  data-calculation=\"0\">Telugu<\/option><option value=\"Kannada\"  data-calculation=\"0\">Kannada<\/option><option value=\"Malayalam\"  data-calculation=\"0\">Malayalam<\/option><option value=\"Bengali\"  data-calculation=\"0\">Bengali<\/option><option value=\"Marathi\"  data-calculation=\"0\">Marathi<\/option><\/select><\/div><\/div><\/div><div class=\"forminator-row forminator-hidden\"><div id=\"hidden-1\" class=\"forminator-field-hidden  forminator-col-12 \"><input type=\"hidden\" id=\"hidden-1_6af6d0ae4944b\" name=\"hidden-1\" value=\"216.73.217.78\" \/><\/div><\/div><div class=\"forminator-row\"><div id=\"phone-2\" class=\"forminator-field-phone forminator-col forminator-col-12 \"><div class=\"forminator-field\"><label for=\"forminator-field-phone-2_6af6d0ae4944b\" id=\"forminator-field-phone-2_6af6d0ae4944b-label\" class=\"forminator-label\">Alternate Phone Number<\/label><input type=\"text\" name=\"phone-2\" value=\"\" placeholder=\"Eg. 9805004000\" id=\"forminator-field-phone-2_6af6d0ae4944b\" class=\"forminator-input forminator-field--phone\" data-required=\"\" aria-required=\"false\" autocomplete=\"off\" data-national_mode=\"enabled\" data-country=\"in\" data-validation=\"standard\" \/><\/div><\/div><\/div><input type=\"hidden\" name=\"referer_url\" value=\"\" \/><div class=\"forminator-row forminator-row-last\"><div class=\"forminator-col\"><div class=\"forminator-field\"><button class=\"forminator-button forminator-button-submit\">Submit<\/button><\/div><\/div><\/div><input type=\"hidden\" id=\"forminator_nonce\" name=\"forminator_nonce\" value=\"26713e3680\" \/><input type=\"hidden\" name=\"_wp_http_referer\" value=\"\/hi\/wp-json\/wp\/v2\/pages\/31199\" \/><input type=\"hidden\" name=\"form_id\" value=\"9338\"><input type=\"hidden\" name=\"page_id\" value=\"31199\"><input type=\"hidden\" name=\"form_type\" value=\"default\"><input type=\"hidden\" name=\"current_url\" value=\"https:\/\/pages.milaap.org\/hi\/rare-disease-treatment-cost-in-india\/\"><input type=\"hidden\" name=\"render_id\" value=\"0\"><input type=\"hidden\" name=\"action\" value=\"forminator_submit_form_custom-forms\"><\/form><\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-15d6516 elementor-widget elementor-widget-text-editor\" data-id=\"15d6516\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p style=\"text-align: center; font-size: 11px; color: #9b9b9b; font-family: 'DM Sans',sans-serif; margin-top: 10px;\">\ud83d\udd12 Your details are 100% private &amp; never shared<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-10ab78a e-con-full e-flex e-con e-parent\" data-id=\"10ab78a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-0b57598 elementor-widget elementor-widget-html\" data-id=\"0b57598\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t\t<style>\r\n.author-wrap{\r\n  display:flex;\r\n  gap:20px;\r\n  align-items:flex-start;\r\n  padding:1.5rem;\r\n  border-top:2px solid #9C3353;\r\n  background:#fff;\r\n  font-family:'DM Sans',sans-serif;\r\n}\r\n.author-photo{\r\n  width:80px;\r\n  height:80px;\r\n  border-radius:50%;\r\n  object-fit:cover;\r\n  flex-shrink:0;\r\n  border:2px solid #E5E7EB;\r\n}\r\n.author-photo-placeholder{\r\n  width:80px;\r\n  height:80px;\r\n  border-radius:50%;\r\n  background:#F3E8EC;\r\n  display:flex;\r\n  align-items:center;\r\n  justify-content:center;\r\n  font-size:24px;\r\n  font-weight:500;\r\n  color:#9C3353;\r\n  flex-shrink:0;\r\n  border:2px solid #E5E7EB;\r\n}\r\n.author-content{\r\n  flex:1;\r\n}\r\n.author-written-by{\r\n  font-size:11px;\r\n  font-weight:500;\r\n  letter-spacing:.07em;\r\n  text-transform:uppercase;\r\n  color:#9CA3AF;\r\n  margin-bottom:.3rem;\r\n}\r\n.author-name{\r\n  font-size:17px;\r\n  font-weight:500;\r\n  color:#1C2B4B;\r\n  margin-bottom:.15rem;\r\n}\r\n.author-title{\r\n  font-size:13px;\r\n  color:#9C3353;\r\n  font-weight:500;\r\n  margin-bottom:.75rem;\r\n}\r\n.author-bio{\r\n  font-size:13px;\r\n  color:#6B7280;\r\n  line-height:1.7;\r\n  margin-bottom:.875rem;\r\n}\r\n.author-linkedin{\r\n  display:inline-flex;\r\n  align-items:center;\r\n  gap:6px;\r\n  font-size:13px;\r\n  font-weight:500;\r\n  color:#185FA5;\r\n  text-decoration:none;\r\n  border:0.5px solid #D1D5DB;\r\n  border-radius:6px;\r\n  padding:6px 14px;\r\n  transition:background .15s;\r\n}\r\n.author-linkedin:hover{\r\n  background:#F0F7FF;\r\n}\r\n.author-linkedin svg{\r\n  width:16px;\r\n  height:16px;\r\n  fill:#0A66C2;\r\n}\r\n@media(max-width:520px){\r\n  .author-wrap{flex-direction:column;align-items:center;text-align:center}\r\n  .author-linkedin{margin:0 auto}\r\n}\r\n<\/style>\r\n \r\n<div class=\"author-wrap\">\r\n \r\n  <!-- Replace src with your actual photo URL -->\r\n  <img data-recalc-dims=\"1\" decoding=\"async\"\r\n    class=\"author-photo\"\r\n    src=\"https:\/\/i0.wp.com\/crowdfunding.milaap.org\/wp-content\/uploads\/2026\/07\/WhatsApp-Image-2026-07-02-at-17.31.59.jpeg?w=1200&#038;ssl=1\"\r\n    alt=\"Jayasree S A \u2014 Content Writer at Milaap\"\r\n    onerror=\"this.style.display='none';this.nextElementSibling.style.display='flex'\"\r\n  \/>\r\n \r\n  <!-- Fallback initials if photo fails to load -->\r\n  <div class=\"author-photo-placeholder\" style=\"display:none\">RR<\/div>\r\n \r\n  <div class=\"author-content\">\r\n    <div class=\"author-written-by\">Written by<\/div>\r\n    <div class=\"author-name\">Jayasree S A<\/div>\r\n    <div class=\"author-title\">Content Writer \u00b7 Milaap<\/div>\r\n    <div class=\"author-bio\">\r\n      Jayasree S A is a content writer at <a href=\"https:\/\/milaap.org\" style=\"color:#9C3353;text-decoration:none\">Milaap<\/a>, specializing in <a href=\"https:\/\/pages.milaap.org\/hi\/2024\/07\/13\/milaap-for-ngos-how-non-profit-organizations-can-leverage-crowdfunding-for-impact\/\">social impact<\/a> and human-interest narratives, focusing on digging beneath the surface of data and public policy to craft compelling, accessible stories that resonate deeply with readers. At Milaap, India's largest medical crowdfunding platform, she brings this approach to life through stories that demystify the realities of healthcare access, treatment costs, and policy gaps \u2014 connecting readers not just with numbers, but with the lived experiences behind them, and highlighting how community-driven crowdfunding steps in where formal safety nets fall short.\r\n    <\/div>\r\n    <a\r\n      class=\"author-linkedin\"\r\n      href=\"https:\/\/www.linkedin.com\/in\/jayasree-s-a-62a199371\"\r\n      target=\"_blank\"\r\n      rel=\"noopener noreferrer\"\r\n    >\r\n      <svg viewBox=\"0 0 24 24\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\">\r\n        <path d=\"M20.447 20.452h-3.554v-5.569c0-1.328-.027-3.037-1.852-3.037-1.853 0-2.136 1.445-2.136 2.939v5.667H9.351V9h3.414v1.561h.046c.477-.9 1.637-1.85 3.37-1.85 3.601 0 4.267 2.37 4.267 5.455v6.286zM5.337 7.433a2.062 2.062 0 01-2.063-2.065 2.064 2.064 0 112.063 2.065zm1.782 13.019H3.555V9h3.564v11.452zM22.225 0H1.771C.792 0 0 .774 0 1.729v20.542C0 23.227.792 24 1.771 24h20.451C23.2 24 24 23.227 24 22.271V1.729C24 .774 23.2 0 22.222 0h.003z\"\/>\r\n      <\/svg>\r\n      LinkedIn Profile\r\n    <\/a>\r\n  <\/div>\r\n \r\n<\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Rare Disease Treatment Cost in India Crowdfunding for Rare Diseases: How Families in India Can Seek Financial Support 12, December, 2026 How Much Does Rare Disease Treatment Cost in India? Rare disease treatment in India can cost several lakhs to crores of rupees, depending on the condition and therapy required. For instance, the Ministry of &#8230; <a title=\"Rare Disease Treatment Cost in India: How Much Does It Cost?\" class=\"read-more\" href=\"https:\/\/pages.milaap.org\/hi\/rare-disease-treatment-cost-in-india\/\" aria-label=\"Read more about Rare Disease Treatment Cost in India: How Much Does It Cost?\">\u0914\u0930 \u092a\u0922\u093c\u0947\u0902<\/a><\/p>","protected":false},"author":212966078,"featured_media":31200,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","_monsterinsights_skip_tracking":false,"_wpcom_ai_launchpad_about_page":false,"_wpcom_ai_launchpad_gallery_page":false,"_wpcom_ai_launchpad_contact_page":false,"_wpcom_ai_launchpad_events_page":false,"_wpcom_ai_launchpad_video_page":false,"_wpcom_ai_launchpad_portfolio_piece":false,"_jetpack_hide_featured_image":false,"_jetpack_featured_image_duplicate_dismissed":0,"footnotes":""},"class_list":["post-31199","page","type-page","status-publish","has-post-thumbnail"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Rare Disease Treatment Cost in India: Expenses &amp; Aid Guide<\/title>\n<meta name=\"description\" content=\"Explore rare disease treatment cost in India for 2026. Compare gene therapy, enzyme replacement &amp; orphan drug prices, NPRD government grants &amp; crowdfunding.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pages.milaap.org\/hi\/rare-disease-treatment-cost-in-india\/\" \/>\n<meta property=\"og:locale\" content=\"hi_IN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rare Disease Treatment Cost in India: Expenses &amp; Aid Guide\" \/>\n<meta property=\"og:description\" content=\"Explore rare disease treatment cost in India for 2026. Compare gene therapy, enzyme replacement &amp; orphan drug prices, NPRD government grants &amp; crowdfunding.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/pages.milaap.org\/hi\/rare-disease-treatment-cost-in-india\/\" \/>\n<meta property=\"og:site_name\" content=\"Free Crowdfunding for India | #1 Fundraising website in India | Milaap\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/milaap\" \/>\n<meta property=\"article:modified_time\" content=\"2026-11-12T13:25:44+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u0905\u0928\u0941\u092e\u093e\u0928\u093f\u0924 \u092a\u0922\u093c\u0928\u0947 \u0915\u093e \u0938\u092e\u092f\" \/>\n\t<meta name=\"twitter:data1\" content=\"12 \u092e\u093f\u0928\u091f\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/rare-disease-treatment-cost-in-india\\\/\",\"url\":\"https:\\\/\\\/pages.milaap.org\\\/rare-disease-treatment-cost-in-india\\\/\",\"name\":\"Rare Disease Treatment Cost in India: Expenses & Aid Guide\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/rare-disease-treatment-cost-in-india\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/rare-disease-treatment-cost-in-india\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/i0.wp.com\\\/pages.milaap.org\\\/wp-content\\\/uploads\\\/2026\\\/11\\\/1-2.png?fit=1920%2C1080&ssl=1\",\"datePublished\":\"2026-11-12T13:25:36+00:00\",\"dateModified\":\"2026-11-12T13:25:44+00:00\",\"description\":\"Explore rare disease treatment cost in India for 2026. Compare gene therapy, enzyme replacement & orphan drug prices, NPRD government grants & crowdfunding.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/rare-disease-treatment-cost-in-india\\\/#breadcrumb\"},\"inLanguage\":\"hi-IN\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/pages.milaap.org\\\/rare-disease-treatment-cost-in-india\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"hi-IN\",\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/rare-disease-treatment-cost-in-india\\\/#primaryimage\",\"url\":\"https:\\\/\\\/i0.wp.com\\\/pages.milaap.org\\\/wp-content\\\/uploads\\\/2026\\\/11\\\/1-2.png?fit=1920%2C1080&ssl=1\",\"contentUrl\":\"https:\\\/\\\/i0.wp.com\\\/pages.milaap.org\\\/wp-content\\\/uploads\\\/2026\\\/11\\\/1-2.png?fit=1920%2C1080&ssl=1\",\"width\":1920,\"height\":1080,\"caption\":\"Managing rare genetic and metabolic disorders in India often involves extraordinary, lifelong medical expenses that vary dramatically by diagnosis. Explore Milaap\u2019s educational guide breaking down the global and national prevalence of rare diseases alongside real-world treatment cost ranges to help families prepare financially and seek timely crowdfunding support.\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/rare-disease-treatment-cost-in-india\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/pages.milaap.org\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Rare Disease Treatment Cost in India: How Much Does It Cost?\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/#website\",\"url\":\"https:\\\/\\\/pages.milaap.org\\\/\",\"name\":\"https:\\\/\\\/pages.milaap.org\\\/\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/pages.milaap.org\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"hi-IN\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/#organization\",\"name\":\"Milaap\",\"url\":\"https:\\\/\\\/pages.milaap.org\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"hi-IN\",\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/i0.wp.com\\\/pages.milaap.org\\\/wp-content\\\/uploads\\\/2021\\\/10\\\/cropped-milaap-logo-resized.png?fit=100%2C40&ssl=1\",\"contentUrl\":\"https:\\\/\\\/i0.wp.com\\\/pages.milaap.org\\\/wp-content\\\/uploads\\\/2021\\\/10\\\/cropped-milaap-logo-resized.png?fit=100%2C40&ssl=1\",\"width\":100,\"height\":40,\"caption\":\"Milaap\"},\"image\":{\"@id\":\"https:\\\/\\\/pages.milaap.org\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/milaap\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Rare Disease Treatment Cost in India: Expenses & Aid Guide","description":"Explore rare disease treatment cost in India for 2026. Compare gene therapy, enzyme replacement & orphan drug prices, NPRD government grants & crowdfunding.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/pages.milaap.org\/hi\/rare-disease-treatment-cost-in-india\/","og_locale":"hi_IN","og_type":"article","og_title":"Rare Disease Treatment Cost in India: Expenses & Aid Guide","og_description":"Explore rare disease treatment cost in India for 2026. Compare gene therapy, enzyme replacement & orphan drug prices, NPRD government grants & crowdfunding.","og_url":"https:\/\/pages.milaap.org\/hi\/rare-disease-treatment-cost-in-india\/","og_site_name":"Free Crowdfunding for India | #1 Fundraising website in India | Milaap","article_publisher":"https:\/\/www.facebook.com\/milaap","article_modified_time":"2026-11-12T13:25:44+00:00","og_image":[{"width":1920,"height":1080,"url":"https:\/\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png","type":"image\/png"}],"twitter_card":"summary_large_image","twitter_misc":{"\u0905\u0928\u0941\u092e\u093e\u0928\u093f\u0924 \u092a\u0922\u093c\u0928\u0947 \u0915\u093e \u0938\u092e\u092f":"12 \u092e\u093f\u0928\u091f"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/","url":"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/","name":"Rare Disease Treatment Cost in India: Expenses & Aid Guide","isPartOf":{"@id":"https:\/\/pages.milaap.org\/#website"},"primaryImageOfPage":{"@id":"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/#primaryimage"},"image":{"@id":"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/#primaryimage"},"thumbnailUrl":"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?fit=1920%2C1080&ssl=1","datePublished":"2026-11-12T13:25:36+00:00","dateModified":"2026-11-12T13:25:44+00:00","description":"Explore rare disease treatment cost in India for 2026. Compare gene therapy, enzyme replacement & orphan drug prices, NPRD government grants & crowdfunding.","breadcrumb":{"@id":"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/#breadcrumb"},"inLanguage":"hi-IN","potentialAction":[{"@type":"ReadAction","target":["https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/"]}]},{"@type":"ImageObject","inLanguage":"hi-IN","@id":"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/#primaryimage","url":"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?fit=1920%2C1080&ssl=1","contentUrl":"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2026\/11\/1-2.png?fit=1920%2C1080&ssl=1","width":1920,"height":1080,"caption":"Managing rare genetic and metabolic disorders in India often involves extraordinary, lifelong medical expenses that vary dramatically by diagnosis. Explore Milaap\u2019s educational guide breaking down the global and national prevalence of rare diseases alongside real-world treatment cost ranges to help families prepare financially and seek timely crowdfunding support."},{"@type":"BreadcrumbList","@id":"https:\/\/pages.milaap.org\/rare-disease-treatment-cost-in-india\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/pages.milaap.org\/"},{"@type":"ListItem","position":2,"name":"Rare Disease Treatment Cost in India: How Much Does It Cost?"}]},{"@type":"WebSite","@id":"https:\/\/pages.milaap.org\/#website","url":"https:\/\/pages.milaap.org\/","name":"https:\/\/pages.milaap.org\/","description":"","publisher":{"@id":"https:\/\/pages.milaap.org\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/pages.milaap.org\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"hi-IN"},{"@type":"Organization","@id":"https:\/\/pages.milaap.org\/#organization","name":"Milaap","url":"https:\/\/pages.milaap.org\/","logo":{"@type":"ImageObject","inLanguage":"hi-IN","@id":"https:\/\/pages.milaap.org\/#\/schema\/logo\/image\/","url":"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2021\/10\/cropped-milaap-logo-resized.png?fit=100%2C40&ssl=1","contentUrl":"https:\/\/i0.wp.com\/pages.milaap.org\/wp-content\/uploads\/2021\/10\/cropped-milaap-logo-resized.png?fit=100%2C40&ssl=1","width":100,"height":40,"caption":"Milaap"},"image":{"@id":"https:\/\/pages.milaap.org\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/milaap"]}]}},"jetpack_likes_enabled":true,"jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/PdsIpn-87d","_links":{"self":[{"href":"https:\/\/pages.milaap.org\/hi\/wp-json\/wp\/v2\/pages\/31199","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/pages.milaap.org\/hi\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/pages.milaap.org\/hi\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/pages.milaap.org\/hi\/wp-json\/wp\/v2\/users\/212966078"}],"replies":[{"embeddable":true,"href":"https:\/\/pages.milaap.org\/hi\/wp-json\/wp\/v2\/comments?post=31199"}],"version-history":[{"count":23,"href":"https:\/\/pages.milaap.org\/hi\/wp-json\/wp\/v2\/pages\/31199\/revisions"}],"predecessor-version":[{"id":31227,"href":"https:\/\/pages.milaap.org\/hi\/wp-json\/wp\/v2\/pages\/31199\/revisions\/31227"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/pages.milaap.org\/hi\/wp-json\/wp\/v2\/media\/31200"}],"wp:attachment":[{"href":"https:\/\/pages.milaap.org\/hi\/wp-json\/wp\/v2\/media?parent=31199"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}